Hi
My dad was diagnosed with brain tumour in November. Originally they thought it was a stroke. He's having palliative care at home with assistance of local hospice and 2 carers 4 times a day. At first we thought excessive but glad now. He was admitted to hospital a few weeks ago and was having quite bad seizures despite being on medication. We were being told there was nothing more they could do but he pulled through and back home now. He is having problems swallowing but not every day. Is this normal for end of life or is not swallowing constant. Also he talks in a strange voice like his lips are stuck together but they're not. He has been bed ridden for 4 weeks but believes he can walk and get to commode and even drive to work! Finding it very hard to say he can't and just say maybe tomorrow. He's on 2 syringe drivers which he quite often pulls out and nurses have to reattach. Lot of questions here but answers to some may help. It's so hard. He's like a toddler most of the time and we struggle telling him the truth (rightly or wrongly). He is eating less and we have started ordering pureed foods delivered but he seems discontent but solids seem to make him cough. He also tries to scroll as if using a phone when he has a packet of anything. We struggle finding something to keep him entertained. He seems so bored but if he has a phone he ends up sending stupid messages or wants to get on banking app.
Sorry such a long message but very hard dealing with someone who doesn't feel like my father anymore. Sometimes you think there's an improvement but only on previous day. 4 months ago he was chatty and normal. It just seems so fast.
Any advise for any points would be very much appreciated
Lee