I was diagnosed with nasal cancer after numerous scans and biopsies and was told it was easy treatable, they would remove my septum and replace it with a bone from my ear.  The next thing they told me was it was worse than they though and would have to remove my nose.  It was a real shock I never expected that.  My surgery went ahead on the 17th March 2020 on the very verge of Covid.  I was sent home the next day as they were getting everything ready for Covid admissions.  My daughter rang the drs surgery after a couple of days to ask if the nurse could change my dressing.  I had radiotherapy starting June 2020, I had 30 sessions and was told I could ring the bill on the way out after my final session.  I didn’t ring the bell as I didn’t know if it would come back.  My first reconstruction surgery dragged on until it happened on 24th February 2022.  The first part of the op was to remove skin off the inside of my left wrist and remove the vein that went up to my elbow.  The second part was to remove skin from the top of my leg on the outer side to graft onto where they took the skin from my wrist.  The third part was to attach the skin from my wrist to the inside of my mouth then to the inside of my nose area.  I was in surgery almost 9 hours, a few days passed in a blur I suppose I had been in the High Dependancy Ward and Intensive care.  I had cried to speak to my daughter and apparently they rang her but I couldn’t remember.  They did tell me it was a very challenging surgery and I came home after 4 days. The Consultant said the next op would be in 2-3 months, that would make it May 2022.  No appointment came and I rang and rang and all they said they were busy with the people who should have had their treatment which was cancelled due to Covid.  I saw my ENT Consultant on 30th November who said he was sending me for an MRI Scan as I had hard lumps appearing in my cheeks.  I got an appointment for the scan but I told them I had magnets in my nose. So I ended up having a CAT Scan.  At my next appointment I was told by the MRI doctor that the CAT Scan showed the cancer hadn’t  spread.   My husband asked the burning question how long and we were told 6 months from the beginning of February.   I saw my ENT Consultant on the  6th June which was a follow up after a small procedure he did for me as I was struggling to breath properly.the other doctor said there was nothing they could do but a Head and Neck Specialist Nurse spoke to the ENT Consultant and he said he could help me, which he did.  He was happy I was ok on the 6th June and said he would see me again in 3 months.  I am supposed to be dead then but he doesn’t think so.  So I’m living along with this “***” as myself and a lady who lives in Dorset call it.  We met in early stages and have now become firm friends.  I have met some really lovely people on my journey, the radiotherapy crew were fantastic, couldn’t have done more for me.  There was only myself in the beginning but eventually there were 12 all at different stages of nasal cancer.  It wasn’t as rare as they kept telling me.  Since receiving the terminal news something inside you goes “phew” no more being scared to death at every scan, every appointment.  My head had been like a bomb site but everything just settled….  This is just my story, everyone is different I’m getting along spending time with my family and especially my no.1 on my bucket list a gorgeous Yorkshire Terrier puppy called Jack York.  Me and my husband have never laughed so much for a long time.  He is 16 weeks old now so ready for his first hair cut as their fur doesn’t stop growing but it doesn’t come out either which is a bonus.  So live your life everyone don’t waste it worrying what will be will be.  My dad always said when your number is up that’s when you die…….