I was diagnosed after biopsies in April 2022.
I have had a course of Ipolumubab and Nivolumab (started June 2022) and am now on just Nivolumab every 4 weeks.
Tumours on my remaining lymph nodes are stable and no change; the ones on my ungs and liver have 'shrunk' to nothing but this cannot be assumed as a permanent situation! I have one on my Adrenal glands which is growing.
My hormone levels are down and my blood oxygen is low.
I have shortness of breath and my muscles ache. I am on Prednisolone whic helps my aching joints. I have low energy levels.
Anyone going through anything similar?
I've just had my 3-month CT and an MRI scan yesterday. The hospital MDT will meet, probably the week after next, to discuss what has happened or is happening!