My dad has recently passed away with stage 4 GBM.
I know everyone's different, but we as a family have had a horrendous 6 months. More research into this dreadful illness is needed.
My dad fell poorly last September, was going to the drs on a weekly basis to constantly be told he had health anxiety and to get a life. In April his symptoms came more apparent and we was referred to the stoke clinc, the following day after his first appointment he was sent for an MRI to them be advised he had a stage 4 GBM.
15 days later day was taken for an operation for debulking, the operation went very in removing a big section of the tumour but left him bed bound and no quality off life. Dad wasn't able to receive no further treatment and spent the following 5 months in a hospital bed In his living room.
Dad changed over the weeks, he lost his memory. Lost the ability of doing things like telling them time, reading. Everything was taken away from him.
In the last few weeks dad was mentally agitated and went into a hospice, he was there for 3 weeks where he sadly passed away, and fought right until the end.
Thoughout the 6 months, we had very little support, no awareness of what to expect and everything was a constant battles to get support needed for my mum and dad.
