My dad is in denial

Hi All 

My dad was diagnoised with Secondary Brain cancer 6 weeks ago. It caused a stroke and he is currently wheelchair bound but has made amazing progress since it all happened. He was told he had 3-6 months. He was then told that he could recieve immune therapy, which i know from googling doesnt give you a great deal longer (buts its something of course).

My dad has always been the optamist and picks what he wants to hear out of conversations. Hes talking about the future, about driving again and getting a dog and doing up the house next year. I know what you are thinking, he is putting on a front or denying what he knows inside. But i know my dad, and i know he is convinced it will be ok.

We had a conversation the other day and i did explain that the cancer wasnt curable, but i think perhaps he thinks that the immune therapy could give him years.

My thought process is that ignorance is bliss. He sleeps easy, he does his home physio work outs every day and he always looking forward. I dont think its fair to deny him that, and if it was me, i would rather be blissfully unaware aswell. 

My worries are 3 things:

1. If someone comes along and puts it bluntly, will it hit him harder and 

2. I keep suggeting lovely things we can do (like have a big birthday or go watch sunrise) but hes sort of waiting to get better first.

3. Important things to concider like PoA and all those other hard conversations 

I hate that we are on different pages, but how can i take away his determination and general good spirit? I havent hidden anything from him, i was told exactly what he was told its just we have absorted it differently. 

Our Mcmillan nurse doesnt seem to worried about it. But i feel like the world knows what he doesnt. I was wondering if anyone else had had similar experiences they could share and how they dealt with them please?

A x

  • Something i have learned over the last year is, if you don't have hope, then you have nothing to live for. His current train of thought is what will get him through treatment and ultimately be his comfort blanket.

    He has 2 choices, curl up and just accept his fate, thus just give up. Or fight and have a chance to be happy for what little time he may or may not have.

    He's your father, you know him best, but I'm of the opinion is don't be the one to crush his hope. I know you just have his best interests at heart, and you don't want to see him unhappy, but he probably knows himself exactly what you're telling us, deep down. However, optimism is never a negative trait to possess.

  • Thank you very much for your reply and validating what I felt inside. You mention having learnt about hope over the past year and imagine you have your own battles at the moment. Sending love and hugs 

  • I've noticed lately that families are heading their posts, "in denial".  My husband had incurable cancer and my daughters often asked if Dad knew how bad he was and that I was always putting on a brave face but until you've lived a daily life with someone with incurable cancer you'll never understand what it takes to get up each day, face what you know is the inevitable but try and Live the rest of your days in a place where its easier to think positively rather than negatively.  Parents also want to keep up a brave front for their families, mine visited regularly and we always did as much to join in as possible, we built memories and enjoyed not discussing cancer, we knew what was happening, talking about it got us no further forward.  So my husband died earlier this year but his attitude has helped me cope with life alone and gosh did we have some fun times, good memories.  I hope this helps a little bit to understand his attitude and I send good wishes to you and your family.  Carol 

  • Hi Carol

    Thanks so much for your reply.

    I am very sorry to hear about the loss of your husband. I'm really inspired by how you all chose to deal with it and instead of dwelling, you took the opportunity to make memories and enjoy your time together. It's a wonderful legacy he has left you by dealing with it in such a brave way. 

    I wont worry about what dad does or doesnt know to be true. I'll just enjoy the time we have, because his positive spirit is very much like your husbands and that's the legacy he will leave with me xx

  • I'm so pleased to hear that, Dad's just wanting to look forward and we did that, even discussing decorating when we knew it wouldn't happen, but I've completed all the plans we made since he died and know he would be happy to that  his wishes were carried out.  Xx