Hospice advice?

My mother in law is dying of secondary breast cancer in a hospice.  She had to go to the hospice last week as my father in law was struggling to cope.  She always said she wanted to be at home.   However that's the only thing she did say.  She never wanted  to talk about death, funeral plans, wills, what would happen...... anything.  She just said I dont want to think about it. The problem with that is it leaves us (as my husband is an only child) in the position of not knowing what to do.  My father in law is struggling to care for himself let alone his wife.  I believe the best care will be given in a hospice but my worry is that because of Covid the closest people to her will not be able to see her in her last days, hours.  We are nearly reaching that point now as the syringe drive has been administered, we have been asked to think about home or hospice. My mother in law is very close with her siblings and it's hard to know what to do coz they will want to be with her but so will her husband and her son, my partner.  I want to be there for my husband as I know it's gonna hit him very hard and she was a huge part of my life.  Where to you draw the line at who should be there and who not, when you have had no guidance from her on what she wishes to do or happened? 

  • Hello Purplecoast and a warm welcome to Cancer Chat, 

    I can imagine it is really hard for you to have to take all these important decisions and you probably feel that you don't really know what your mother in law would have wanted since she did not make it clear. It must be incredibly difficult to have to make these calls now, to have to think about who should be there or not. It's very thoughtful of you to be considering what she would have liked in her final moments, but the reality is that sometimes it is necessary to make a decision that goes against what she would have wanted but which is on the other hand in everyone's best interest. For example, she has had to go to a hospice because it was all getting a bit too much for your father in law who as you said already struggles to look after himself. In a situation like this, no one should feel bad for the decision to take her to hospice as it was a necessity it seems.

    I am not sure exactly what the hospice rules are at the moment regarding the number of people that can be by her side - it's worth discussing with the hospice what is currently allowed and planning accordingly. Sadly all these covid rules are outside of your control and you could perhaps just give them an indication of who your mum in law would have liked to have by her side and seeing with them whether you can work something out that takes into account all the current covid regulations. Having this discussion with the hospice might also help you reassess your options and make you consider whether bringing her home would be a viable alternative. You will have to weigh all the pros and cons and it's certainly not an easy task. Our page on choosing where to die may give you some helpful insights and if there's anything you would like to discuss with our cancer nurses, don't hesitate to give them a call on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm. 

    I hope you manage to find the best possible solution for your mother in law and your family. We are thinking of you during this emotionally difficult time. I hope our members will pop by and share their own experiences with you.

    Best wishes, 

    Lucie, Cancer Chat Moderator

  •  

    Hi Purplecoast, 

    This is always a difficult decision. Are you aware that if your mother-in-law stayed at home, she could have carers coming in up to 4 times a day, to see for her needs? She could also qualify for someone to sit with her at night in her own home. There would naturally need to be family input too to help with washing and ironing and dstribution of medication, etc. If her siblings are so close to her, could you rely on some of them to help out? It is very draining when everything falls to one person.

    I agree with our moderator Lucie. It would be worth phoning the hospice to see what their visiting rights are at present, but remember that these can always change. We sadly lost a family member recently and, we were only allowed to visit him on the day that he died.

    I am thinking of you and you family and, hope that you get this sorted soon. Please remember that we are always here for you.

    Kind regards,

    Jolamine xx