Feeling lost

My father has been diagnosed with a rare bladder cancer. In the last 7 weeks his live has changed completely. He had been unwell for 12 months and not seen a GP for those months. I was constantly phoning telling them all the red flags were there. BP which was life threatening high he lost so much weight tired all the time. I work in pharmacy and was never of phone to them I knew that my father had some form  of cancer but it fell on deaf ears at his doctors surgery. It was a phone consultation with nurse never GP but the still didn't listen when I requested further blood tests. Now my dad has a matter of weeks left damage has been done. He has two naprostomy bags in and had to have a catheter inserted tonight because of other problems. I am absolutely devasted at the thought of not having this man my best friend in my life anymore. GPS need to take responsibility my dad and lots of other patients are being failed. They need to step out from their COVID bubble and see patients and listen to family members when they have serious concerns about that family members health.

  • Sorry can't really give you any advise but just saw your post and wanted to let you now no matter what time it is that someone is reading it and thinking of you and sending you their best wishes. X

  • Hellsbell. so sorry to hear about your dad.

    I had a simillar thing where I had an appointment with my GP for my own problem, then I brought up the subject of my wife, I knew she had a problem with cancer and told my GP.

    But unfortunately my GP said even though Carol was my wife and he knew us for quite some time.  Unless Carol came to him there was nothing he could do. as it was patient doctor and could not talk about the wifes problems, same as what ever I told him about my own problems he would never repeat what we had talked about. So I wouldn't blame your doctor, as your dad has never gone to see him, he couldn't intervene.  now if you attended your dads appointment then that's totally different.  But as you say you work in a pharmacy I think you know how GP's work.

    And I totally get what your saying about only getting through to switchboard you have to navigate past the gastapo receptionist. who once told me to take a photo and send it to the doctors. which I was not happy about and said if I was 80 something years old would you expect me to take a photo. I followed that up with if I sent you a photo of the rash,  Then I'd be done for sending indecent images by phone. eventually she gave me an appointment with clinician. which was a total waste of time. since then I've been admitted to A&E  and was kept in for  four weeks. that's how GP's operate these days too darn scared.

  • Hi... It was always the nurse that would phone him back . Then when she said to come to surgery it was always her he would be seen by He told her he hadn't been feeling well for a wee while but still no urgency.. She would see him then go speak to doctor come back and give him new medication because for 3 months his BP was life threateningly high and was told to come back in 3  weeks. But I knew my dad was very ill and would phone back after a week  would again speak about his weightloss was told at one point his weight wasnt an issue. So to go from 17 stone to 13 stone is not important in a matter of 8 weeks but still no urgency about it. My dad has a data form for me to talk on his behalf to his GP but they weren't listening. So a man who's never been ill or been in hospital has just weeks to live. He's been in hospital 3 times in last 7 weeks last admitted last  Saturday and is still there very ill. They have a duty of care towards patients but they've failed him big time. Cancer is touching and affecting people's lives all over and yes it's an emotional rollercoaster for everyone. My dad says it's the circle of life and that's what's helping me to  cope at the moment but it so didn't have to end like this for him.  Hope your doing ok .