pilocytic astrocytoma in children

Hi I am a mum of a 4 year old girl ,who recently (3m Ago) had a brain surgery ,having a pilocytic astrocytoma. Is there any mum or a dad whose children had it ? Would like to speak to someone whose in same situation ,looking for some support as I already read everything what I could find online ....

  • Hello Edita

    I'm sorry to hear that your little girl has recently had surgery. I hope that she is recovering well and that as a family you're being supported by the hospital and those around you. 

    I don't think that we have any members on the forum who have been in the same situation as you but I wanted to let you know about The Brain Tumour Charity. They have a specific children and families service along with a support group for parents. I'm sure you'll be able to connect with other parents who have been in similar circumstances there. They also have a helpline that you can call to talk to someone. 

    I do hope that you're able to connect with other parents for some support and advice. 

    My best wishes to your daughter and your whole family. 
    Jenn
    Cancer Chat moderator