Eating and taking pills

I never ever posted in any forum before. I am a 22 year old girl. I have been a leukemia patient since mid 2018. It's been almost 3 years now. I had two relapses while I was on treatment.
 

After my second relapse the doctors said that there's nothing that can work anymore and maybe we can try haplo stem cell transplant as a last trial (as i didn't have any matched donors)

 

hearing all the risks that come with this kind of transplant made me hesitant but then I decided to go for it...i haven't even had the cells engrafted yet, but I am having a major problem. I am not able to take any medications orally or eat at all. I had NG tube inserted more tahn once, but I vomited it out a few days later every single time. I am losing so much weight and i am not getting any nutrients needed for engraftment because i am vomiting all that I try to eat. It's not because of nausea only but also a conditional reflex. I kind of have food trauma because of the 3 years of treatment filled with vomiting, and stomach pain. I dunno how to help myself eat anymore. I don't even care anymore about leaving the hospital because all food taste completely different, so it's not like home food will be better in any way. I feel like i am in some kind of vicious circle that i am not able to get myself out of :cry::cry:

  • Hi there ...

    Oh bless ya, your sure been through the mill ...  I know it can effect your taste buds ... please talk to your oncology team ... tell them how you feel ... maybe some councilling would be good ... I know it must be really getting you down esp with covid and visiting being limited ... but hold on in there .. maybe they can give you the nutrients you need another way ...

    But please talk to them ... hope your seeing someone close to you ... share your feelings with them too .. I'm sending you a vertual hug.... to give you some good vibes ... let us know how you go .... Chrissie x