Adrenal cortical carcinoma at age 21

I want the world to know , Acc has no judgment to age ,race ,sex and sexuality . Acc is a lot to handle it stops you from working , holding things like a knife and fork for some ,socialising and much more . 
I do though remain positive for the sake of my body always fighting back and I am very grateful.

refusing chemotherapy and choosing the tablet mitotane was something that I didn't worry about and still don't till this day . 
I believe and this is MY opinion. I believe in my family chemo doesn't work but kill . It's the sad truth and I have more that 5 family members desist which is enough for me to not ever change my mind . 
 

everyday I wake up and take penecillin then I wait an hour and take my hydrocortisone. 
I now take 3 other new medications this is due to me having heavy clots and coming off my chemo tablet (mitotane) due to the fact that I was struggling to walk ,talk and do most things for myself . 
after I take these new meds I typically feel a combination of fatigue, sadness, hunger ,anger and honestly I just want to cry . 
Afternoon time I eat my lunch which I try to make high in protein and and iron . This is just because I know what my body likes and dislikes now . Then I have another hydrocortisone tablet .

bring on the early evening I have another penicillin tablet I wait and eventually have dinner followed by not dessert (no I wish) but Mitotane (I started taking it again) ,hydrocortisone and at around 9:30-10pm I have my last tablet which is a hormone based tablet . 
this has made me appreciate the good times and not hate the bad because this way I actually have a life . Yes I may act out of character at times but my heart is in a good almost great place . 
 

id love this to be a place where anyone can ask me anything I'll promise to reply always and tell you the latest on my journey.

and remember if we both have Acc it doesn't mean we will have the same outcome ,side effects and also reoccurrences . 
 

in the future id love to be a Single Mother ,happy stress free with a child and a owned business ,something to do with food as I was formally a chef in hotels in central london which I adored . 
id wake up happy to go to work , forgetting I actually got paid at the end of the month felt like a bonus , 

I love every kind soul on this earth even if we haven't met . 
hello and thanks for reading 

The names kinda of dig at the fact that I stand my ground when it comes to my choice .  
yes I am aware cherry picking is a form of key hole surgery and obviously "cherry picking" 

but it has a deeper meaning to me . 
 

  • Hello Reielle1997 and a warm welcome to Cancer Chat! 

    Thank you for sharing your story of living with adrenal cortical carcinoma. From your description, it does sound like ACC can have a big impact on an individual's life and ability to work and function on a daily basis. It's great that you have remained positive despite having to deal with this. Poor you, you seem to be taking a lot of tablets but it's good that they are working and that you are making plans for the future. Sounds like you had a great time when you were working as a chef in hotels in central London and I hope you can make all these wishes come true in the coming months and years. 

    I thought I would also mention this thread on our forum from other members who have been affected by adrenal cortical carcinoma. [@ElleRei]‍  who is a similar age to you mentioned in that thread that she was also taking mitotane so perhaps someone here you could share experiences with! 

    Best of luck with all your endeavours and best wishes, 

    Lucie, Cancer Chat Moderator