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Kidney Cancer

Kate7969
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Hello, my name is Katy and I am 33 years old with a one year old little boy, Jacob. My world came crashing down on Monday when I was called to the hospital following a CT scan. I have been told I have a suspected tumour on my kidney, which could be cancer. And I have to have part of the kidney removed. I am on a complete emotional rollercoaster right now and just keep looking at my beautiful little boy and crying thinking that I could leave him without a mum. I am due to see the consultant on 30th July to plan surgery and discuss the steps but very much aware due to Covid I am not going to be able to have any visitors in hospital. I have never been away from my baby for that long and it's breaking my heart. I have also been told that following surgery I have to wait two weeks for them to confirm if it is cancer, and next steps. I really just wanted to get my feelings down in case there's anyone in a similar position, or anyone that's been through this that could offer some advice and guidance. Thank you for reading x

  • Offline in reply to Kate7969

    Yeh sirni had mine done in lockdown they ring you first to got though your back ground family if anyone else has had it like mum dad grandparents they then aent me a pice of paper to take to the doctor or hospital if your gp wont do it all they do is take blood samples off you then send it to the genetics team worst part is waiting because it takes up to 4 months to get them back their looking for the R224 geune in me to see if I have a fault. All the way through my referral biopsy ct and even day of my surgery I just made jokes about it to try and stay strong I think I did it more for my mum because she lost my sister 4 year ago I just brushed it off realy untill now its driving me mad thinking about it I have 5 kids one has adhd and autism so I know how it feels and my youngest has just gone 1 xxx

  • Offline in reply to Becca1234

    Thank you that helps! No one has actually explained what the tests will entail. Are you getting follow up scans now? I just wish I could switch off but it seems everywhere I look there's something that makes me think of cancer! Having the operation during covid times was brutal. Really bad experience xxx

  • Offline in reply to Kate7969

    I have to a ct scan every year and blood aswell to keep any eye out its same with I never leaves you mind always a trigger to make you think of it xx

  • Offline in reply to Becca1234

    Just stumbled across this thread and made me feel I'm not alone in my experience. I was 37 weeks pregnant when they found a kidney mass by ultrasound and CT scan (was induced to deliver baby b4 scan) and MRI later they think it's cancer. I'm scheduled to have my whole left kidney removed in a weeks time. My baby will be 9 weeks and I have 5 year old twins too. They also found lesions on my liver and polyps in bowel which were investigated and not thought to be linked but having another MRI on liver in 3 months to check. Such a lot to take on board as well as pregnancy /new baby hormones /sleep deprivation and has put a dampener on what should be my new mum bubble. I'm breastfeeding too so trying to express for surgery period as they won't allow baby to come into hospital to feed due to COVID. It's keyhole so hoping to be out after one night. What were your experiences of recovery and pain levels after surgery? 

  • Offline in reply to Bouncer

    7 years ago I was about 28 weeks pregnant when tumour was found in my right kidney. My whole kidney was removed when my baby was three months old and it was confirmed to be cancer. 

    I was followed up for five years; ct scans blood tests every 6 months. I also saw consultant following each scan and was discharged about 2 years ago.

    I have noticed that recently I have been having a funny feeling in my left flank. Not pain, but more an uncomfortable feeling. I'm scared because I know the tumour I had before was there for years as I had been to GP complaining of flank/back pain, fatigue and had pre-eclampsia after first three pregnancies. Yet nobody thought to do a scan until I was pregnant with my 4th and thought I was losing my baby as I went to the loo and the bowl was filled with blood. I was peeing blood basically and it was the Obstetrician who realised it wasn't coming from my cervix and ordered the scan. 

    Last week GP has done blood test which he says we're fine. Urine had blood but says wants to repeat in a few weeks. I feel like I'm getting really low in mood and worrying about this but nobody understands hiw I feel.

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