Kidney Cancer

Hello, my name is Katy and I am 33 years old with a one year old little boy, Jacob. My world came crashing down on Monday when I was called to the hospital following a CT scan. I have been told I have a suspected tumour on my kidney, which could be cancer. And I have to have part of the kidney removed. I am on a complete emotional rollercoaster right now and just keep looking at my beautiful little boy and crying thinking that I could leave him without a mum. I am due to see the consultant on 30th July to plan surgery and discuss the steps but very much aware due to Covid I am not going to be able to have any visitors in hospital. I have never been away from my baby for that long and it's breaking my heart. I have also been told that following surgery I have to wait two weeks for them to confirm if it is cancer, and next steps. I really just wanted to get my feelings down in case there's anyone in a similar position, or anyone that's been through this that could offer some advice and guidance. Thank you for reading x

Parents
  • Hi Katy

    Im Tammy, I apologies if this posts twice I typed it out and hit reply but it vanished. I also have a Jacob (9) and two other children (7 year old twins) I'm not quite in the same boat as you as I only had my ct scan last week but fear I maybe in the near future. I was told from my ultrasound that there are many reasons a kidney can appear lumpy, although dr google (I know it's a bad idea) says otherwise and there must have been a reason they put me on the two week pathway. So although not the same as I've yet to have a diagnosis I can understand the worry and stress of waiting, I swing between I'm too young, I'm a year older than you so clearly not, and I want to see my babies grow up. Hopefully you recover quickly from the surgery and don't have to stay in too long, I know it's not the same as visiting but video calls are a good option. I commented on another sub forum on here, if you click my name you should be able to see it, a lady commented on there with the name of a Facebook support group that may be good for you. I'm very happy to listen if you ever need to chat or vent or whatever. Take care x

  • Hi I'm Jo, and I was diagnosed with kidney cancer nearly 3 years ago now , my tumour was nearly 10cm and was stage 3 grade 3 , I had a radical nephrectomy so lost my left kidney ! If I can offer and help or guidance in anyway please feel free to ask 

  • Hi Jo, thank you so much for reply! How did you find the operation? That is what I'm currently most nervous about. Mine is a partial so I have been told it is key hole. I have never needed GA before so that is scaring me, I had a caesarean with my little boy but that's totally different! How did you cope? I just keep bursting into tears every time I look at my baby. Do you have follow up scans now? X

Reply
  • Hi Jo, thank you so much for reply! How did you find the operation? That is what I'm currently most nervous about. Mine is a partial so I have been told it is key hole. I have never needed GA before so that is scaring me, I had a caesarean with my little boy but that's totally different! How did you cope? I just keep bursting into tears every time I look at my baby. Do you have follow up scans now? X

Children
  • Hi Kate I was in hospital for four days , although mine was open surgery , the op itself for me wasn't as bad as I imagined although getting up from a seated or lying down position was challenging ! The pain was fine though , more uncomfy than anything ! I got scanned after 3 months as they saw a lung nodule that they wanted to rule out as a reoccurrence ( blessed to say it wasn't ) then I had a scan at 6 months then a year and then it went annually, and my last scan in June just came back clear too