Should I feel like this?

thankfully my cancer is specualated to be a low grade cancer (still waiting for pathology) , thankfully yet again my option for treatment as of now is surgery. I had that last week and have been told I don't need any physio because of my speedy recovery of not being able to weight bare at all, to being to bare all the weight given to me. But however, as of rcently I have been noticing that I, myself have changed dramatically.

as an example, I usually eat till the day ends and some, but recently I haven't even got the guts to eat a meal, I have to force myself to eat breakfast, but if I eat one I am put off eating the rest of my meals. 
ive rcently been feeling weird. Not about to vomit weird but I'm not sure how to describe it, it's like when you have the skin sensitivity when you have a fever, I feel dizzy all the time, I find I'm zoning out and I just all out feel sick. It's not due to the eating thing, as half way through the week when I noticed this, I decided to force myself to eat no matter how I feel, and if anything it got worse. 
it's hard to describe, but I just don't feel healthy, I am wondering if this cancer isn't as low grade as they speculate, yet again as mentioned before, I am still waiting in a pathology report post-op, but something doesn't feel right. The cancer I had was in my leg, and strangely the only places this cancer will return to is the same place or in my lungs. (I did have another account on here but for some reason won't let me log in)

the cancer I had is called 'fibromyxoid sarcoma'. And it was in my lower right thigh just above the knee cap. 

sorry for the long explanation -Zak

 

  • I'm sorry for the way you've been feeling lately Zak.

    If you're worried do be sure to let your doctor know but hopefully some of our members who have had a similar experience will offer their support and advice soon.

    Fingers crossed you won't be waiting too much longer for those results.

    Kind regards, 

    Steph, Cancer Chat Moderator

  • Hiya Zak, 

    So I am just over 2 years into remission with Fibromyxoid Sarcoma (there is very few people with it so welcome to being rare!) I had a tumour removed from my upper arm about two years ago now and honestly it took me 4-6 months to feel back to being myself.  I was exhausted and felt sick and was unable to concerntrate on anything for quite a while which made going back to uni a challenge.  

    You just have to be super kind to yourself and remember what you have been through is life changing and can feel super overhwleming so no wonder it will affect all aspects of your life.  I remember distinctly that for a while i could only eat a childrens size of chicken nuggets and chips and felt nauseous really easily.  I know that the idea that the cancer might come back especially with FMS it can appear in your lungs is a lot to process but having regular checks and talking with my doctor is the best way to live because preventitive medicine is much better than reactive medicine. (Although it doesnt make it less scary and even now I get anxious before any appointment). 

    Have you had any test results yet? I find one thing that always helps if you're getting results at appointments and stuff is to have someone take notes or go with a list of prepared questions so that all you need to focus on is getting to the appointment and seeing the doctor and so that you have all your questions answered and all the info to review afterwards when you get home.  

     

    Sending you all the positive energy in the world!! 

    Hannah