Hi all!
I was hoping I could find someone through here who is able to give their experience or could shed light on my situation.
My history:
I was diagnosed with stage 2 inflammatory breast cancer while I was 29 years old.
On 4th October 2019 I had my first EC chemotherapy (4 cycles) and Paclitaxel (3 cycles) after. I finished chemotherapy on 20th February 2020.
In December 2019, I was genetically tested for BRCA but it was found I had the TP53 mutation instead. None of my family have had cancer - I think my great grandfather had leukemia. it is a high chance that I could be 'de-nova'. My cancer is also HER2+.
I finished chemotherapy on 20th February but I am still having Traztumabab and Paztumambab (possible spelling errors here) every three weeks until the end of the year. I also have Zoladex injections and I have just been put on Tamoxifen for the next 10 years.
on 2nd April, I had a full mastectomy to the cancerous breast and 11 lymph nodes removed it was confirmed on 15th April that all the cancer has been removed successfully. After the covid-19 situation eases, I will go on to have a risk reduction surgery to the other breast
So with all the above mentioned.. I am now trying to decide whether to go through with radiotherapy.. it is a high risk that I could encourage another cancer with my genetic mutation and I am not sure if I should risk anything.. I am currently in deep thoughts with the following: I have radiotheraphy and kill cells which turn cancerous / I don't have radiotherapy and there could be some cells lurking around which will regrow / I don't have any issues at all!
I am wondering if anyone else has the gene mutation and have been in the same situation as me? Did you go through with radiotherapy or did you choose to leave this out of your journey?
I know it is down to me at the end of the day and I am scheduled to see my doctor in a few weeks to discuss the pros and cons, but I guess it would be nice to know if there is someone out there who can understand and who could give a bit of advise? Trying to find anything with my mutation online is very tough as there is hardly anything but medical papers which I'm not qualified to understand :(.
Thank you :)