I'm so sorry you've had this news Connie. I've also got non Hodgkin's lymphoma (age 29). It's certainly not easy to deal with but I can try and give you some advice for dealing with chemo. It mostly made me sleepy so I didnt have to occupy myself too much but I do recommended downloading some things to watch/listen to while in hospital. Personally I found chris and Rosie Ramsey's podcast hilarious but each to there own. As for dealing with the anxiety speak to your cancer nurse about this and they can offer support to you. Just make sure you are sharing your feelings with someone. 
 

good luck with your treatment x

No problem. I've finished my chemo and I'm about to start radiotherapy. Unfortunately the chemo didn't work so we will have to wait and see what happens after radio.

Wishing you all the best x

Hi Lila and Connie

how are you both doing now?

I had 6 rounds of R Chop for a large Primary Mediastinal Lymphoma. The chemo worked pretty well and got rid of the vast majority of it, I am now going to have radiotherapy to hopefully finish it off.

my doctor seems happy with progress and feels that the radio therapy should do the trick, but I do feel gutted that the PET wasn't completely clear (although is was done 2 weeks after chemo so I suppose there is a chance that it could be a false positive).

Did the radiotherapy work for you?

Hi 

unfortunately radiotherapy did not work for me as the lymphoma was very aggressive. I've since gone on to have three rounds of rgdp chemotherapy and a stem cell transplant which I'm currently recovering from. It's not been easy but my last scan showed no evidence of disease! 

Hey Lila

Thanks for your reply.

Sorry you've been through so much, but it's all been worth is as you are now in remission which is fantastic, so pleased for you.

My Mass is 90% smaller than it was, so with a bit of luck the radio should see off the last 10% .

Again, really pleased for you.

Best Wishes

James

Hi,

I am really sorry to hear you have lymphoma and hope your treatment has gone well. I wanted to ask because I'm 26, I have two lumps on my neck and have been waiting since July 2020 for an appointment at the hospital because of covid pandemic and noticed I have a small lump at the bottom of the left side inside my mouth. Did you have a lump when you saw the dentist? I'm getting blood tests next week and I'm just quite worried about not been seen yet and if my lump in my mouth might be what you have had and whether seeing the dentist for an x ray to check.