Triple negative breast cancer

I was diagnosed with triple negative breast cancer on 14 Feb 2019 at age 35. I have an 8cm tumour in my right breast with lymph node & internal mammary gland involvement.  I also have 2 x 1.9cm tumours in my left breast - a separate cancer but also triple negative. So I'm lucky enough to get 2 separate cancers at the same time! I am also BRCA2+.

I've just finished chemo & am scheduled to have a double mastectomy with immediate DIEP reconstruction next month. 

My surgeon is super lovely and I totally trust her, however... I feel like she (& my oncologist) are so bloody positive the whole time. Now, I appreciate that this is a good thing at times, but they just keep saying that everything will be ok & refuse to discuss anything negative. 

Not that I want there to be negative things to hear! It's just that I appreciate that I have quite a lot of cancer going on (not to mention 2 separate ones!) and they just keep discussing the next steps. But I don't even know if a double mastectomy & radiotherapy will solve the issues! 

I know they can't predict the future, but how can I get them to be more open & honest with me???

Parents
  • Hi, I can see this post is now a few years old. I have just had a similar diagnosis and if you are still active on the forum I'd love to hear your experience if you would be happy to share. I hope you found support, care and compassion at every turn and that your team were right to only be positive. Being newly diagnosed I'm looking for anyone in the same storm, knowing we might well be in different boats and at different stages of the journey. I'm awaiting genetic results but currently grade 3 stage 3 TNBC, lymph involvement, multifocal 6cm and 3 cm right breast. Chemo due to start any time now. All the feelings.

Reply
  • Hi, I can see this post is now a few years old. I have just had a similar diagnosis and if you are still active on the forum I'd love to hear your experience if you would be happy to share. I hope you found support, care and compassion at every turn and that your team were right to only be positive. Being newly diagnosed I'm looking for anyone in the same storm, knowing we might well be in different boats and at different stages of the journey. I'm awaiting genetic results but currently grade 3 stage 3 TNBC, lymph involvement, multifocal 6cm and 3 cm right breast. Chemo due to start any time now. All the feelings.

Children
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