Paediatric NLP Hodgkin’s lymphoma

Hi, does anyone have any experience of Nodular Lymphocyte Predominant Hodgkin’s in teenagers that they could share. My daughter has recently completed treatment and as there is little information available,due to the rarity of this type of lymphoma,I am wondering what sort of treatment other young people have received for this and what they longer term prognosos looks like. Any information about your experiences would be appreciated

  • Hi there ...

    So sorry you've had no one that can help as it is probly a pretty rare one ... and more difficult to find Simerla... but I'm answering to take you back to the first page in hope someone picks it up ...

    Cancer is really crule .. but when it touches our young ones it sucks big time ... it has No compation ... but I'm keeping everything crossed she kicks cancers butt ... and my heart goes out to you ... as a mum, its heartbraking to know other mums are having to see their babies ( they are always our babies, no mater their age )  ... hold on in there ... chrissie

  • Thanks for your kind thoughts Chrissie