Hi JayJay1984, 

I am so sorry to hear about your little one's diagnosis at only 2 years old but I am glad everything is going well so far and it is at an early stage. One great resource I wanted to let you know about is our information page on Wilms Tumour (also called nephroblastoma) and in there you will see that there is a page on Coping with Wilms Tumour with a list of organisations that can help which you could get in touch with for additional support and information. I also noticed that on our page on treating Wilms Tumour there is a sub-section on Wills tumour that has come back where it is mentioned that "relapsed Wilms tumour are rare. If it does come back, it is most likely to happen in the first 2 years after treatment."

I remember chatting to others here recently who had children who had been diagnosed with Wilms Tumour - one member that springs to my mind most recently is Gr8ful  who posted this thread a few months ago and whose 5 year old grandson was also diagnosed with Wilms and it was also in the early stages so don't hesitate to respond to that thread if you would like to talk to others who have been through something similar before. There was also a member with the username Prayingforamiracle  whose 5 year old little one had just been diagnosed with Wilms Tumours on both kidneys - feel free to read their Wilms Tumour diagnosis thread and to post a response if you would like to share your story. I would also like to mention hsw202 whose 1 year old daughter has bilateral Wilms with nephroblastomatosis and who posted a reply on Gr8ful 's thread. I hope that you will hear from other parents who are currently going through the same - you are not alone and I hope that this forum will be the perfect platform for you to support one another during these difficult times. 

Best wishes, 

Lucie, Cancer Chat Moderator

My son was diagnosed with stage 4 bilateral wilms last year. He went into remission in May this year and then relapsed in August. He is currently on the ICE protocol for relapse. It relapsed to his lungs and the only symptoms we noticed were that he’s was a little more tired than usual and a little paler