So my beautiful niece is only 14, she has been back and forth to hospitals for two weeks now. She suffered facial paralysis whilst at school and then they found a lesion and a mass on her brain at the moment the cause and type is unknown. I just don't really know how to help her through this, school and gcses are all hard enough without this looming over her aswell. I just want to help her in anyway I can, we don't know what is exactly wrong with her she currently has no treatment plan just some more tests that we know are planned but they are currently not booked in. The specialists she saw recently just argued infront of her, if she should or shouldn't be on steroids and they didn't come to a conclusion, they left understandably very frustrated. She has questions that none of us can answer like if her face will get better, will the mass grow and start to hurt.
She is sleeping an aweful lot and gets fatigued easily since this started. She's being looked after by a combination of our local hospital and xxxxxx. Next week is half term and she can't be out with her friends as she needs adult supervision at all times at the moment, I will have her next week so she won't be alone but how can I best talk to her about all this when I have no answers to confort her. I spent an hour just laying with her a cuddling her last week as she didn't want to talk but didn't want to be alone either and it breaks my heart. If anyone has a starting point to all this I'll take any advice going. I'll also take any fun activitie ideas we can do for the week, she's a bit limited as all sports and exercise is out and whilst I wanted to take her to the cinema I have talked myself out of the idea incase she has a seizure, we have been told it's a possible risk factor for her. She also struggles with eating and drinking since the facial paralysis so I'm not certain she would like to go out for a meal but I will let her decide if that is something she would want to do.