I got a recent diagnosis of Non Hodgkins Lymphoma at 22 years old.
I had my first ultrasound of the lump in my armpit (5th of January) at the Breast clinic in outpatients ward, where they found underlying lumps, took biopsies and told me they believed it to be Lymphoma and I would get a call on the 16th after 4pm. After waiting until around 4:30PM I decided to call them instead, and was told I will get a call back - which eventually came, close to 5PM - where i was told that the biopsies had not been processed correctly so I would get a call to come back up for more biopsies. I went back on the 19th January for more biopsies and waited until the 30th to hear back with a diagnosis of Non Hodgkins Lymphoma, but she could not tell me much more because she is breast clinic and it would be haematology that will contact me.
I then waited a full week with no phone call, and no support, before calling to the Haematology department on the 6th February, where I was met with an aggressive tone from the receptionist, who gave me no assistance other than telling me my name wasn’t on their system, and putting me through to outpatients who put me through to Breast Clinic - again, unhelpful.
The latest update was today when I once again called the Haematology department myself, where the receptionist again told me there was nothing on the system for me until I explained how long i’d been waiting and she checked the calendar and told me I had an appointment on the 20th of this month, and the letter was sent on Monday when I had spoken to the other receptionist.
Has anyone else experienced this?
