GBM Stage 4

Hi all, I'm hoping for some advice, stories and experiences of others who have gone through watching a loved one with this. 
 

My best friend. Akin to a brother, his 8 year old niece was diagnosed with stage 4 GBM a few months ago. Seeing her deteriorate before our eyes is devastating. We feel helpless and lost. She's often bed bound and really struggles. But she tries. Despite the treatment and her difficulties with everything, she still smiles. Drifts in and out but when she's with us she's amazing. Just feel so powerless and broken and stuck. We know to make the most of every moment we can, but we're literally just watching her die in front of our eyes and I don't know what to do. 

  • Hi there ..

    So so sorry your going through this heartbraking time at the moment... we lost our 18 year old granddaughter to acute myeloid leukaemia ... she went through 9 months of intense chemo and radio and stem cell transplant... I think there's nothing more crule then seeing a young one go through so much ... and like your one, she smiled till the end ... 

    I wish I could give you wise words .. but truth is, there's no easy way through ... it's just finding as much strength for them as possible, holding her hand and helping her walk her last journey.... I'm still hurting when I think of our Jess, 2 years later ... but I know I'll have to learn to live with it, as she is and will be in my thoughts every day ...

    But above all, her favorite song ... remember the good times ... keeps me pushing the sad memories away, and remember her time before cancer ... so hold on in there and know your not alone ... too many of us have trod that path ... sending you a vertual hug... Chrissie x