31yrs old should I refuse tamoxifen?

Hi! I have recently had a lumpectomy to remove a 1cm invasive carcinoma in my right breast. I am nearly finished my 19 sessions of radiotherapy. The next treatment is tamoxifen for 5 years. I am resisting taking it as I want to have children in the next few years and am worried about its effects on my fertility. Has anyone else refused tamoxifen and how did you support yourself in your decision? Thank you x

Parents
  • I took it for a couple of years aged 48-49 stopped cos I had to pay for it and didn't like side effects. Maybe I should have taken it longer as 19 years later I have 3 suspicious hard lumps in the breast I had a segmental mastectomy in cos of breast cancer and dcis. I also had atypical hyperplasia which I didn't understand but means your breast cells start dividing and looking a bit odd so raising your risk of them going more odd i.e. cancerous....

    There may be other drugs that do the same thing as tamoxifen that might suit you better. I never investigated this myself as I was keen to get away from doctors, nurses, volunteers in flower shops, bad Halal food, surgical stockings, and curtains round my bed. I now have PTSD as you can imagine but unfortunately I have an appointment on Friday 13 and I hate anyone in a white coat - nothing personal but it would be nice if they treated you as an equal.

     

    Seagulls

Reply
  • I took it for a couple of years aged 48-49 stopped cos I had to pay for it and didn't like side effects. Maybe I should have taken it longer as 19 years later I have 3 suspicious hard lumps in the breast I had a segmental mastectomy in cos of breast cancer and dcis. I also had atypical hyperplasia which I didn't understand but means your breast cells start dividing and looking a bit odd so raising your risk of them going more odd i.e. cancerous....

    There may be other drugs that do the same thing as tamoxifen that might suit you better. I never investigated this myself as I was keen to get away from doctors, nurses, volunteers in flower shops, bad Halal food, surgical stockings, and curtains round my bed. I now have PTSD as you can imagine but unfortunately I have an appointment on Friday 13 and I hate anyone in a white coat - nothing personal but it would be nice if they treated you as an equal.

     

    Seagulls

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