I have always applauded the care my husband has received over twelve years of living with cancer. Until our Macmillan nurse came into the equation. What a traumatic time it is becoming and I am bothered that this so called caring organization may add to someone else’s trauma it seems they are completely oblivious to what it is like to have a loved one in the position of living with this aweful desease. Our wonderful caring nurse has not attempted contact with me but has always dealt with him on her own been very negative about his condition talking about the end as though it was about to happen and even suggested the care home he should go in, together with the district nurse team have decided that he should have anticipatory drugs and just send him a respect form in the post without a cover note or anything to suggest they have compassion for his situation or mine. I work in a care home and find these actions acceptable or impose them on others at this delicate time. I urge you not to use this organization that boasts specialized cancer care. They will only cause further pain and trauma. What they do really needs readjusting and really think about how difficult this time is and how really to help.
