I am utterly broken.
She went in to hospital on Jan 29th for a stem cell transplant for AML and never came out.
Complications began as a result of the radiation conditioning which gave her terrible mucustitis and required critical care. She got through that, even had her tracheostomy removed and then picked up what seemed like quite a minor chest infection and they decided to put her on a ventilator, against my wises, and she never got off it.
She was just 38 and we've been together for 25 years. Spent all day, every day together, worked together. She went through so much hell over the past 7 months and for it to end like this is just crushing.
I wished with all my heart that every stage of the treatment journey I could now say and feel like all the right calls were made. But I don't think that. I'm not re-writing history because of the tragic outcome either. I really did feel like they were taking a big chance with the type of transplant as the leukemia had given her a stroke, she was very close to the cut off age of 40 and she failed two lung capacity tests in the testing phase pre-transplant. That will haunt me forever. That she ended up dying on a ventilator having proven that her lungs were obviously not strong prior to the transplant. It makes me question why they made her do the tests if she could fail the first one, be sent for a second one on the back of the first failure, fail the second one and they still decided to carry on with the plan. Like, why have the tests then?
It just makes this all so much harder than it already is. She was my entire world.