Lost my son to rare incurable cancer

I lost my 34 yr old son a week ago today at a hospital 3 hours away from us, he had got married the previous Friday at the hospital hardly any family because of covid, they did a good job ... my lovely boy had a rare cancer and I dont believe he got the right care ( not the hospital he passed in ) it took several months before he was even diagnosed going from pillar to post

It was rare for his age as well. They did an op and  radiotherapy then basically sent him on his way im not sure but I dont think he even had a CT scan.  he apparently had pains in his back late last year but his consultant dismissed it.

At one point he was told he had 3 to 1 year to live but then another consultant told him 3 months the previous person was not the expert so to speak so that was heartbreaking enough.. 

When he died I feel like he suffered, I was not there his wife was it all happened so quick.. she had sent WhatsApp messages and she said he asked to be knocked out as he was gasping for breath they said the doctor was busy elsewhere I dont think he had even had a syringe driver then, an hour and a half later they do the driver and a port in his leg she phoned saying to come up did not get far and she phoned to say he had gone.. 

No point going us as could not see him ( covid restrictions)  on top of that its been Easter Bank Holiday so that's  slowed things down. Wife told us the medical examiner said it was was severe cancer that took him.

I'm struggling with the loss I have so many unanswered questions my heart is broken

 

 

  • Your post broke my heart. I am so sorry for your loss and it seems quite sudden. I think you are right to have so many questions. This Covid has a lot to answer for and has resulted in cancer patients being put on the back boiler in terms of diagnosis and treatment I would say you deserve answers to all your questions so you can then grieve properly. My thoughts are with you at this terrible time