Mam ♥︎♥︎♥︎

My mother passed away on August the 30th 2019. Me and my family feel so let down by the hospital , I followed the rules of the chemo card that we were given on the signs of what chemo can do , on the day before my mother passed away I phoned the cancer Ward saying she was breathless,diahrea and the feeling of a cold on her chest and they told us to go down to our local GP , I took her and they pulled her off the blood pressure tablets cause my mother blood pressure was very low, during her visit to the GP she was very breathless. Next morning at 9:30am my mother passed away at home with me and my father there, as the cancer Ward asked her to come in straight away that morning but it was to late she died from a blood clot to the lung , why didn't I overrule the cancer Ward and GP , I knew she wasn't her self and it was her last chemo before a break . The chemo was working as there was no cancer on the lung the postmortem said so it was controlling it. People need to be aware of what chemotherapy can do and nurses need to talk to the carer of the patient if patient is unwell enough to talk . My mother should still be here , I'm so lost without her xxx. My mother won't be put down as a cancer patient death it will be as a blood clot, how many people have died because of chemotherapy unknown I suppose , cancer kills more than the government say. Chemotherapy side effects should be pumped into carers and family more to see the signs of when there is something wrong , patients and family know better than nurses and doctors when there is something wrong , better safe than sorry , to late for my mother ️ ️ ️

  •  Ive heard its agony but they are putting turmeric in that 7 sea's suplement its not the b all and end all but ive read where it can realy help it is a autoimmune disease is arthritis theres a lot taking it not just put in turmeric and arthritis you will be surprised but your choice yes read a bit about iritis not good i started to feel like i had somthing in my eye for weeks but just put cream on and its gone now but did suspect that 

  • Hi Paulus.

    I tell you. You'd know if it was iritis. You get an awful achey, painful feeling deep in the eye. Can't stand bright lights, awful deep headaches & you feel extra tired & irritable. It really affects your whole mood. Especially if you have to get up at 2/3am & go to a&e. I hate going to the eye hospital. But it's one of the best in the world. I'm so lucky i'm just a bus ride away & i haven't got kids to bring with me!! The waiting rooms are always full. You have to see 4 different people before you even see a Dr. You queue up first for them to check your address or see if you're a new patient. Then move to a different part to see the triage nurse. Then they move you to the main crowded bit to have an eye test. Then you see someone to dilate your eyes. Then the big wait starts for the dr. I bloody hatr going. But the staff are lovely. Give you loads of time & really seem to care. I met 1 couple from Liverpool.they had to get ferries & trains & buses. I'm so grateful i don't have to do that. Especially when i'm in pain! That turmeric thing sounds interesting. I've read ginger's meant to soothe joints. But my thing is a genetic thing. Had a distant Irish auntie that kindly gave it to me!!! But there are people much worse off than me. 

  • Have a read about termeric then you can make your own mind up its its becoming very popular the proof of the pudding is in the eating no pun intended as its a spice its the curcheminoids in it that have the anti-inflammatory effects i take a 1000 mgs a day but ime a large build but at that amount its pretty harmless on the tum spk to your dr first thoe some of them scoff because its not a pharmaceutical drum and are pretty much brain washed no i didnt have eye pain like that but eye pain realy pulls you down it made me irritable at times .ime luck and my liz was to its complicated what happend with her another health authority treated her at first if thats the word .d.r.i seems so well organise you never wait longer than 15 minutes to give  blood and its in the same group as sheffield teaching hospitals so a massive amount of great drs as teaching hospitals get a lot of money  they were great with liz . And not to shabby with me eithere . So hows it going today for you other than ear ?  Guess antibiotic should star working late tomorrow . I used to get absesses in my ears when iwas very young i remmember that ear ache and thats a very long time ago hopefull you will feel a tad brighter when thats gone .

  • Hey.

    I'm so glad you & Liz were treated so well. Everyone needs kindness when they're not well. 
    Thought i was feeling a bit better. Then i get a deep sharp stabbing pain in my ear & get back into bed! Plus the antis make you feel ill. Sometimes i'm really glad i live alone. (Apart from my crazy hamster Ian!) I can just get back into bed & leave the washing up if i'm not in the mood. Or get up & make a sarnie at 2am & listen to the radio. I was so tired last night. But i couldn't sleep. So i got Ian out. I get loads of things for him to climb & run around. (A mini playgroubd). Shut all the doors. I've learnt my lesson. Another hamster i had that lived up to her name. (Nautie Nellie!) got behind my washing machine & chewed right through the wires. Totally broke it. Me ma was lovely & bought me another machine. The men couldn't believe my hamster wasn't blown up!! But Ian was good. Had a great 2hr run around. While i sat on the floor with him & listened to the radio. It really cheered me up. I'm so glad i can do that. I live in a small block of flats. (5 floors). It's halloween & i'm glad i haven't got loads of kids round me trick or treating. Getting bad headaches & earaches. The mood i'm in. They'd be getting tricks all night!!!

  • Have you tryed a warm hot water bottle on your ear may give you some releife and paracetamol they may take a bit of the pain away ime same i suffer realy bad insomnia ime usualy up raiding the fridge i the early hours but ive cut out suger and lots of carbs as they say ime prediabetic but only borderline 6..2 was 5 in hospital .whitch is normal .p

  • Thanks. I've heard of the bottle thing. Might try it. It comes on suddenly. I was getting the most awful pain like that in both my hips. I was bedridden. Of course me ma was there. I was lying down. Nothing stopped the pain. Just like electric shocks on both sides. I was in tears. Mum held my hand. I always remember those awful times. But SHE was there. When you're not well, it makes you very emotional. You feel vulnerable. 
    My boyfriend's got diabetes type 1. He's 50 now. It started when he was 43. Went to his gp with symptoms. He was rubbish. Assumed he had type 2. He wasn't overweight. He had actually lost weight, was thirsty all the time. Needed the loo alot. Classic symptoms. Didn't ask him for a urine test or anything. Just gave him tablets. They didn't work. Went back. A nurse checked him out, started to cry & apologised. Told him he had type 1. It's an awful disease. People really suffer. Now he has neuralgia. Which affects the nerves im his face. Awful shooting pains in his jaw. He's on meds for life now for that. It's funny. But we both had to go to 2 different a&e's in the same week. Longterm stuff is a pain!!! Literally.

  • My daughter had type one from being nine it was a scary time the  no internet just what drs deemed to tell us the didnt have the pens like now all needles and ridgid regiem.liz got type to but she had so many health probss but she did fight but thers limits i used to think well whats a bit unfair women living longer than men ive changed my view on that now best to go first . Ye unusual type one at 50 ive known a few guys with type one but they a used it and it got them one i used to say john your the last to be have suger loaded deserts but it took him to .me ive lost a stone going ro look at a motorised treadmill tom then i can jump on whener i feel like it for a while just walking my second eldest brothers 8o this tear and thinks nothing of walking 25 .miles him and his wife go all over in there .motoholme i iont mi nd walking that distance but not in the cold lol worked out side all my life  ever got used to it lol .wellime off to bed see if i  an get off .missed two  nights since friday so going while i feel sleepy .paul hope you sleep

  • around july/august last year my mum first got poorly, no energy to do anything, wouldnt even leave the sofa for the whole day, which progressed day by day, after a while she had freezing cold hands and feet and started to struggle with her vision to the point she could only recognise people if they spoke in the room with her. Doctors spent nearly 12/13 weeks trying to find the issue, blaming this thay everything they could but never looking into if it couldve been cancer, until my dad took all the information to a close friend who is a private GP/doctor who said that all the tests and information we had been told didnt link up and he felt we had been on a bit of a wild goose chase, so now we are in late november, early december, they find cancer in her uteris which almost caused my mum to perk up finally having and answer, instantly onto chemo with the doctors saying its the best shot at sorting it, so we are at the end of january now, chemo seems to be going well with no side effects, result we are thinking, til one day she hits rock nottom, worse shes ever been, then qe find out the chemo dose is too high, so have to wait for that to oeave her system untol they can do the lower one, wait a few weeks for more scans, the cancer is now in her liver, bones the whole lot, this is when we find out its termjnal, one piece of news you can never truly process for weeks on end, almost not accepting that you have to believe it, shes in high spirits for a while unril the tumours start causing her pain constantly, and this is the pary which is almost harder than the day she died, seeing her suffer and struggle and not being able to do anything about it was the hardest part.

    The support we got was questionable to say the least, my mums actual GP saw her once from the point of which she was diagnosed, very happy to write letters telling us who's doing what but not once did she make any effort to be available or to contact us during my mums illness, until the day my mum actually passed away, bearing in mind my mum had been unable to leave the house for maybe 2 months now, her GP turns up on the day she passed away and has the cheek to ask "how long has she been like this?" 

    Lastly the service we got from the district nurses was above and beyond anything I could ever hope for, no matte what time of the day or what ot was they were here for her and us, if i could thank them everyday I would, they kept my mum comfortable and smiling til the very end and for that I salute them 

     

  • Hi Paulus.

    I wondered how things are with you?

    For me. It's been weird recently. I met a woman on a bereavement counselling course. I thought we'd bonded. We used to go out sometimes. Her mother died a few months before mine. So we were both vulnerable & emotional. Her mother bought a flat in Spain. It's very sad. She'd only been there a few months. Then she died suddenly. Very sad when it's so sudden. My 'friend' went over there to try & sell the flat. She asked me to look after her mum's orchid. She'd had it 3yrs. I didn't know it had been her mum's plant. She told me she might be gone 2/3 months. I was pleased to help. Sounds silly. But it made me feel grown up. (I should be at 48!) I hadn't realised how fussy these flowers can be. Just the right amount of light, heat, little water. (TEPID WATER). Plus it was bloody big!! So annoying. Well i think you can guess where this is going...

    The flowers started to drop off 1 by 1. So i sort of assumed it was a gonna. Plus it seemed to be very dehydrated. I tried to save it. But i thought it was passed saving. I threw it away. Like i said. I didn't realise it had been her mother's. I whimped out of telling the 'friend'. Then she texted me last week. I apologetically texted her & told her about the poor orchid. I wasn't feeling well. I can't remember ifi've told you i have an ear infection? Well it got alot worse. Had to go to a&e last Wed. Very bad bacterial infection. On antibiotics. Very bad hearing & pain in right ear. So i was feeling so ill. So called 'friend'. Started bombarding me with texts & calls about the plant. Swearing at me & she sent me 85 abusive texts. Saying 'you killed my plant. It's a living thing'. She called me a monster. She knows my health stuff with the arthritis & severe longterm problems with my eyes. She said how pathetic i was for not being able to work!! (I was doing voluntary work. But couldn't handle it. Heavy lifting). So i had to give it up. I found it so emotional seeing my mum in hospital. We were very close. The 'friend'. Slagged me off for not being with my mother when she died. She called me a ***. All these disgusting things, because i couldn't save her plant. Now i realise it had sentimental value. But i have never, ever been spoken to like that. I've asked friends what they think. They all agree with me. She was way over the top. I told her i've saved the texts & if she contacts me again. I'm going to the Police for harassment!!! 

    Plus i went to my GP this morning. My ear got alot worse. The hearing's really bad. I've got a yeast infection. Plus my ear's now perforated. Put me on more antibiotics & i've got laryngitis. Very sore throat. So if that woman calls me again. I will 'try' & give her a mouthful!!! What a week!!!

  • Hi vixen ime ok just had mri today they work till 8pm on that and sundays trying to keep up . Ive an appointment sunday to have opthalmic surgeon meaaure my eye as catteract in right eyes gone worse they have done one it was magic the coulers after the take the gause of is unbeleivable a scan next friday i think they like my company and just want a chat ha ha ime under 3 diffrent specialists but ime not to worried . Yes i used to get abbses in my ears when i was 7or 8and still remamber pain plus my sisters were taking me to see the ten commandments film and i couldnt go just shows you my age if i had known i would have waited 58 years and watched it on tv my sone had it to your eardrum may have be perforated for years its its bacteria gets inside but some times it takes a while usualy you notice a difference in 3 days so you should be ok soon but like toothache it gets you down if you have a shower plug your ear so water cant get in we had a special plugs made for rich we even went private as under thatcher he could have been waiting a year it was blo.ody awful the people have short memories of what the tories did it was a bad time for a lot then . I wouldnt worry to much about that lady i doupt its the lilly she taking the loss of her mum on you and probably otheres to shes shown her coulers but its sad to loose a friend i know orchids are difficult to grow just a change of temp can finnish fhem off its not you shes realy angry at its herself but its not on you did your best and it died they dont last forever she may come back and apologize later but if not then shes not worth the effort or upset . So try not to get to upset as i know you are everyone is so vunerable after a loss and not just for a few months longer than that you both have your emotional head on but eventualy the logical head  starts to come back then you feel more grounded and its a real relief .paul hows ian lol ps ime not a medic or anything just been around a bit you might find the laryngitis and ear prob may be linked .