Missing Daddy

I sit here writing this with tears rolling down my cheeks. As I have just listened to the words to a song called Butterfly Kisses and they are just so my Dad. 

The story started December 2017. Dad went in for some tests. After going through these and seeing the doctor they told him he had Bladder Cancer. At this stage I did not know what stage it was at. He starred BCG treatment in January 2018. After this had not worked he saw doctors again I asked if I could go with him and mum when he next went to see them at the hospital. 

It was about May 2018 time I think ( lost track of everything, you'll understand). The doctor confirmed that the BCG had not done what they wanted it to and he said it's stage 4. Well this took me back I had questions these went out the window. They were putting him forward for a course if radiotherapy, so he had this last summer finished that in early September. Saw the doctor who said that this had not worked. He ended up with a catheter which he hated. The doctor put them in touch with McMillan, for palliative care. At this point dad  was walking going shopping and driving. iAt the beginning of October he got sepsis and was in hospital just over a week. Had an appointment to see the consultant this got mixed up at their end and he didn't go as they didn't understand that he was in hospital. Saw them a couple of weeks later and they where going to see if chemotherapy would be viable. Saw the doctor a couple of weeks later ( having had to arrange transport as dad was not able to get downstairs and we were awaiting a stairlift going in, another story). He saw a lovely doctor who explained that due to him not being fit enough she would not be able to give him chemotherapy.

While waiting to come home I saw him counting on his fingers. I asked mum later that night is she knew how long dad had got as I saw him counting she said he had asked the doctor how long she had told him nothing is definate approximately 6 months. So from 13 October to 14 December 2018. He stayed upstairs in bed most of the time saying things that didn't make sense. Got dressed in the 11 December with the help of my brother and me and gave me a kiss, made his way downstairs on his bottom (no stairlift in ) sat in the front room for a couple of hours. Then went back upstairs and that was the last I saw. 

I feel so guilty not being there more. My mum did a fantastic job looking after dad. 

McMillan came once a week to see how things were. 

I'm just so glad dad was at home and not in hospital when he passed. 

Sorry for the long jumbled story, just struggling to get my head round this.. Me and mum are sure Dad knew more about his condition more than he wanted to tell us. 

He also had a pacemaker and diabetes which is why the doctor said they would prefer not to operate to remove his bladder and which is why he went down the BCG route.. 

Thank you for reading this. 

If anyone can help me, please let me know what I can do. 

  • Hello Sweetie - this is so terribly sad for you & your family & you ask if people can let you know what to do. I so wish there was something (anything) to make this easier for you to bear but I can only offer some words which might help you at least a little bit.

    Grieving is a process we go thro' when we lose someone we love. It's often called 'grief work' & I think about it this way. The work is like walking up to your chest in wet sand. It's slow & it's terribly heavy & each step is so, so difficult but to get out of the sand we just have to keep forcing one foot in front of the other. At first it feels impossible but little by little the sand becomes drier & drier & one day we find we are walking on it & not in it. That, sweetie, is all you can do except for one other thing. Remember, your dad wanted to bring you into the world so you could live a life & that includes the good & the very, very sad. I think you'll do your lovely dad proud by getting thro' that sand, walking on it & living a happy life. Your dad will always be in your heart as you do that.

    Be kind to yourself as your dad would want. Post again if it helps you. xx

  • Thank you for replying, your words mean so much and make sense. 

    I will try my best to keep my head up and  be strong, taking each day one by one. 

    Just worried about mum, it's starting to hit her I can tell in her voice when I speak to her. It's going to be hard with what is their 50 wedding anniversary in a few weeks and Dad's not here. 

    Thank you again. 

    I'll post again when I need to talk. 

  • Good morning sweetie - I'm so glad you found at least a little bit of comfort in what I said. It's not surprising that things are starting to become 'more real' for your mum (& probably you too). In the time immediately after we lose someone we love there are things to keep us busy - funeral arrangements, people calling etc. etc. but then it all slows down & the reality of it all becomes more real. It takes a lot of coming to terms with - the time when the sand feels so heavy. Worse for your mum now is the anniversary which must feel as though it is looming. She will be thinking back & thinking of what things might have been. 

    All you can do is be there for her as I'm sure you are already doing. Encourage her to talk about how she feels & perhaps ask her what she wants on the day itself. She may want company or may want to be alone so let her do whatever makes her most comfortable. Nothing, as I'm sure you know will make it okay but you know sometimes the things we dread the most aren't always as bad as we expect. I certainly hope this is the case for your mum.

    It's clear that you care very much for your mum & worry about her & I'm sure she knows that & that it helps her - probably more than you think. Carry on as you are & the day will come & go & somehow you will all get through it.

    Thank you for letting us know how you are doing & I'm glad sweetie that you will post again when you need to. I'll think of you. Don't forget to be as kind to yourself as you are to your mum. xx

  • Thank you. 

    Think it's going to be a while. I'll keep in touch. :)​​​