Hello,

My sister died last October from advanced gliobastoma, she was diagnosed with a Stage 4 brain tumour in January 2018. She was 44 years old. After the initial surgery (debulking) and the diagnosis she decided not to undergo any invasive treatments like chemotherapy and radiotherapy. She outlived her diagnosis of 3-6 months, she lived at home and was only taken into hospital 3 days before she passed away. She survived 10 months from date of diagnosis.

Prior to being diagnosed with a brain tumour, my sisters mental health had slowly deteriorated over a 10 year period, during which she was sectioned under the mental health act numerous times and labelled schizophrenic, she had several other symptoms which included a jerky arm movement on one side of her body, as well as jumbled up speech and repetition of certain words or phrases. All of her symptoms  gradually got worse over time, and it was only when she had a major seizure, was she investigated and underwent several CT scans and eventually an MRI with contrast scan, it was then the brain tumour was revealed.

i just wanted to know if anyone else has experience of this late / mis diagnosed brain tumour.

Thank you