My dad lost his fight yesterday

I lost my dad yesterday to this vile disease and I'm totally devastated. He was diagnosed with renal cancer 3.5 years ago. He had seemed to be getting more and more tired during the second half of last year. By November he had started to feel sick and wasnt eating much. His onc decided to give him a break from the medication and he was due to see him again in Feb. Fast forward to the end of January 2019 and he was sleeping most of the day and started to feel very weak. He was taken into hospital where they discovered he had sepsis and the cancer had spread to his stomach and bones. We were devastated as there was nothing they could do except palliative care. My dad was not totally aware of the severity of his condition and was desperate to come home. We bought him home 2 weeks later and my mum partner and I have been nursing him ever since. It has been exhausting round the clock care as he was very restless and was never comfortable although he was totally lucid right up until the end. Mercifully he was not in any pain although very nauseous and complained of acid and indigestion a lot. He needed the commode every hour and it took two of us to move him as his stomach was so swollen with fluid. The last couple of days his stool turned black and he complained that the room was dark although it wasnt. Yesterday he became extremely weak and started to loose control of his bowel. It was heartbreaking. The nurse came and gave him a sedative and some morphine she told us she thought he only had hours left. Within an hour he was gone. The three of us were with him at the end stroking his hair and telling him we loved him. Then his breathing changed and he was gone. The end was very peaceful and for that i am grateful but I cannot stop reliving the horror of those weeks we cared for him. I feel broken. I tried so hard to make him comfortable but during the last 3 days he would not rest for more than 10 mins at a time. I was so exhausted and i would get uptight with him. Now i really regret it I just hope he forgave me. And then there's the loss of dignity. He was a very proud man and sobbed when he had an accident. I just cant get any of this out of my head. He so wanted to live he was not ready to go at all which i think may account for some of the agitation and panic as well as the fact that he lasted as long as he did he even picked up a bit when he came home although we knew he would not get better. I miss him so much and cannot believe I'll never see or speak to him again. I cannot imagine life without him and I'm so scared. My poor mum is not coping well I dont know what she'll do living on her own without him. Sorry for the long post I need to get it off my chest and would love any words of support....

  • Hi there, I am so sorry to hear this sad news. As you say this disease is vile.  I'm sure that your dad is very proud of you and glad that you were beside him and cared for him for his last few weeks. I'm sure that in time these memories will fade and be replaced by good memories. Do take care of yourself and your mum and partner.

     

  • Hello there, your post mirrors a lot of things that happened with me with my husband

    I too keep going back over the last weeks and days before he passed away,I was exhausted too and got short tempered.By chance I discovered a post about “Anticipatory grief “ which happens to a lot of carers of terminally ill people.It gave me some relief to know that my emotions and reactions were not abnormal,carers are under an unbelievable amount of stress because we love/loved our relative so much

    I can’t give any more advice as it is 8 weeks to the day since my hubby died ,but it did help,to know of this phenomenon 

    Best Wishes

  • I’m sorry about your Dad. I lost mine on the same day and it’s crushing. I’m in my early 30s and I don’t know anyone my age who has lost their father (not that I’d want anyone to go through this) so it feels very lonely as you can’t  describe the pain. I have a two year old and have no idea how I’m going to muster the energy to resume our day to day. Sorry realise this is not making you feel better but we will get through this and we will feel happiness again. Remember we carry our parents genes and all that love they passed into us will stay in us so your Dad will always be a part of you. I’m sat here watching a weather documentary, which my Dad would have loved. So he’s still here, just in me. And the same applies to you. Like you the final weeks were consumed with care and upsetttint times for Dad and I’m trying to remove those thoughts when they creep into my head as it’s not how Dad would want me to remember him. Plus inevitably you start to think, I wish I did this or wish I said that - it’s natural to have these thoughts apparently. Yes I’m worried about my Mum too, she seems stronger than me right now but I guess when things settle (and I go back home), it’ll hit her and I’m worried about that. All we can do is make sure they know we are there for them and to support them. I’m going to take Mum on holiday, something to look forward to and we’ll go somewhere that never interested Dad. It’ll be a focus on just us. Man, this is so tough but you’re not alone. Our aim is not to forget our Dads but think of our time with them with fondness and happy memories. It’ll take a hell of long time though, just hang on in there and take one day at a time xx

  • Hi Lancashirelass 

    Im so sorry to hear about your husband. Thank you for taking the time to reply. The images that keep rolling through your head are terrible arent they? I wish i could just turn my brain off. Dad's only been gone two days but today is much harder than yesterday - I think the reality is starting to set in. I hope you are finding each day a tiny bit easier. Please take care of yourself xx

  • Dear s204

    I am so sorry to hear about the loss of your dad. Your message was beautiful and very word resonates with me. I sobbed when I read it and now I read it when I'm feeling low as your words have given me great comfort. I'm 45 and my dad had just turned 70 at the end of Jan. We hadnt always seen eye to eye but since his diagnosis 3.5 years ago we had grown very close so in some ironic way we had the last laugh over the vile disease. He was very frightened of dying so we tried our best to protect him from the fact that he didnt have much longer when we bought him home 5 weeks ago. He was desperate to come home from hospital and used to call me in the middle of the night and beg me to come and get him. So there was no way he would have wanted to go in a hospice. It was a dreadful time looking after him but it gives me some peace that we protected him from some of the horror of his condition although Im sure he must have known inside as physically he was in a dreadful state.

    Each day seems to be getting harder as the reality sinks in that he is no longer here. I would just love to speak to him again. I keep sending texts to his phone which we havent cut off yet. I just dont know how people begin to accept that they are never going to see that person again. 

    Today we have to get his death certifucate and begin the process of arranging the funeral. Last night me and mum spent hours playing songs he liked for the  funeral. For some reason this seemed to take our mind off of it. But last night i dreamt of him again as if he was still ill in the bed downstairs so not a nice dream and when i woke up the sense of loss came crashing in again.

    I hope you and your mum are managing. She is lucky to have you as I am sure you can comfort her as you have me. The holiday sounds like a great idea. If you need to talk I'm always checking in here.

    Lots of love and hugs to you 

    Victoria xx

  • so sorry for your loss I have just lossed my dad to liver cancer in February this year he was only diagnosed in January 2019 I am just pleased that my dad didn't suffer but I miss him so much I can't get use to him not beening here sending my love to you x

  • Hi Michelle thank you for your kind message. I'm so sorry to hear about the loss of your dad I'm glad he did not suffer. The emptiness is unbearable isnt it? I just miss him so much and can't get my head round that i'll never be able to see or speak to him again. Everything reminds me of him. Im sitting here now watching some of the programmes he used to watch. Its not as painful as i thought it would be but i think thats because i cannot comprehend that hes never coming back....