My Amazing Mum has gone.

Hi

8 years ago my Mum was diagnosed with a Pancoast Tumour on her right lung. We where all devastated, especially when they told us that they couldn't operate & that she was terminal. Over 30 years ago, my Mum had a tumour removed from her gullet.

After a high intense dose of Radiotherapy for 2 1/2 weeks, my Mum's Tumour had shrunk & stayed that way! And after 5 years of wonderful care at the Beatson Cancer Centre, my Mum was discharged! Her consultant told her to "go away & live her life"! And that's exactly what she did! 

My Mum & I did everything together, I took her to all her hospital appointments, we went to Spain on holiday at least 3 times a year, we went to shows, the theatre, concerts, shopping or just even costing up in bed & watching the TV. 

3 years ago, we awoke one morning to my Mum having seizure in her bed, to cut a long story short, my Mum had her thyroid medication stopped by her go for 6 weeks and this resulted in my Mum almost losing her life. We where told 4 times, by 3 different Doctors that she wasntwgoung to make it! She was placed on a ventilator and an inducedicoma and after a week, she managed to get off the ventilator. Unfortunately, she then contracted a chest infection and ended up back on a ventilator, she then had sepsis phenomena & MRSA. They just couldn't get her off the ventilator, but after 5 weeks of ups and downs, she eventually got off it & got home 2 days before Christmas! It was the best Christmas ever!!! In the April, she was sunning herself in Spain! She just never gave up, such a fighter!! DontD get me wrong, times where hard for my Mum, shedshave good & bad days, the bad days would be shedsget up from bed & lay on the couch all day as she was so exhausted the majority of the time. Good days would be us going for lunch or the shops.

Fast forward to 20th December 2018. My Mum was a bit rubbish, breathing not that great, but when I asked her if her breathing was ok she would always say it was fine & that she was feeling fine , just the usual tired. My gut told me no, so I took her to A & E and they admitted her with a chest infection. She was in hospital over Christmas & her birthday which was on Boxing Day. But started the New Year at home, which was great. While she was home, she was never that great, more sleepy than normal, more bad than good days, but when asked, would always she she was feeling fine, just tired. On 29th January, I rushed my Mum to A&E, she took really unwell, really quickly. When I took her to A&E, they rushed her straight through to resus. They told us that her sats were 70% she was on oxygen & was very poorly. They started her on IV antibiotics. She was really sick, but responding to treatment & when we left her in the hospital on the Wednesday night,  they where talking about reducing her oxygen. I received a phone call from the hospital on the Thursday to say that the Doctors had been round and where wanting a chat with me regarding the plan to her care. By the time I'd arrived, the nurse told me that my Mum had deteriorated in the last 20 minutes & didn't have long to go! I just couldn't believe it. I held my MumsMhand & told her how much I loved her, how much my Dad & brother loved her & that she was the best Mum I could have ever wished for. Then she was gone, just like that.................

It turns out she had Sepsis phenomena and was to be transferred to HDU.

I"m now struggling hugely with my Mum not being here, I still live at home, so saw my Mum everyday in life. The hardest thing is seeing her empty chair. The longest I had gone without seeing my Mum, was 2 weeks. She was my whole world, I just miss her so much, I miss her hugs, I miss her cheeky face & I miss seeing her. I thought initially I was doing ok, but last week & this week I just can't seem to stop crying, I just want to lay in my bed & not speak to anyone. I can't face going out to the shops, cause that just reminds me of my Mum. But I have this overwhelming feeling of guillt. That I am doing things without my Mum. Even silly things like watching a TV programme that she watched. I feel so guilty that she can't watch it either.

 

I'm sorry if this post is very long, but I just wanted everyone to know my Mum's amazing journey & that despite my Mum being terminal, we where so lucky to have 8 wonderful years with my amazing Mum xx

 

  • Hi Mags,

    My heart is hurting for you and what you are going through right now. My mom currently lives with me (she's 83, almost 84), she needed help day to day after my father passed away in 2011. Your story has a purpose for me, to remind me to be kind and appreciate every moment. You will be in my thoughts and prayers. Please continue to post or talk to any of us when you need to.

    Laura xx

  • Hi Laura

    Thank you for your kind words. Your right, do appreciate every moment, even the not so good ones. Our Mum's are so precious. We where lucky in that we treated every Mother's Day, Christmas, Birthday as though it could be my Mum's last,  and we spoiled her & where blessed with 8 years  of all of it. As well as working full-time, I along with my Dad cared for my Mum & it is tough Laura, don't get me wrong, sometimes my Mum & I would fall out, but only for about half an hour!! But just remember, your Mum knows deep down what you are doing for her & she does appreciate everything you are doing for her. Your doing a great job

    Mags xx

  • Mags,

    I’m so sorry to read of your loss and of your Mum’s long cancer journey.

    Many of us have been in a similar position and have an idea of how devastated you are feeling.

    Time doesn’t heal, but impossible though it seems now you will eventually remember your Mum before she had cancer. 

     

    Best wishes

    Dave

  • I just wanted to send lots of hugs, I lost my mum 4 months ago and I miss her every single day. A month after she passed I discovered I was pregnant with my first and the whole situation has been an emotional rollercoaster. 

    I know what you're going through, I feel robbed that at 27 my mum is gone, that she won't meet her grandchildren, that I have lost my best friend and it sounds as if you have too. It's good to cry, it is still so very raw and I'm afraid I'd be lying if I said it has got a whole lot easier but I can say that I can speak about her without feeling like my heart is being ripped out now and I don't cry every day. 

    I'm sending big hugs and my condolences, although we know that losing our mother's is a part of life we can never be fully prepared for it just know that your feelings are all completely valid and normal (and I say that because grief is unique and there is no right or wrong way to feel) and that in time our mother's would want us to find happiness again. Xxx

  • Awe Joanne, it's just so tough eh? But your Mum has now given you a new purpose in life, that's truly amazing.  Make her proud of you & become a good Mum just like she was.

    Thanks for your kind words, it's 4 weeks today since my Mum passed & I can honestly say, everyday is a struggle. I just feel so guilty all the time. My Mum was my whole world, everything I did revolved around her. If I wasn't at work, I was with my Mum. Two weeks before my Mum passed away, I bought her a wee Shih Tzu puppy. We both went & she picked him & called him Oscar, she was so looking forward to him coming to live with us, my Mum was admitted to the hospital on the Tuesday night, she passed on the Thursday & we picked Oscar up on the Saturday. I just feel so guilty that we get to spend time with him & he has been such a welcomed distraction, my Mum was just so desperate for that Saturday to come & it never did for her..........

    I hope your keeping well with your pregnancy, I'm sure your Mum will be watching over you, keeping a close eye on you, look after yourself.

     

    Mags xx

  • Hi mags

    I don't know if you ever come on here any more but if you do I would really like to talk to you

    Sorry for the loss of your mum. She fought for a long time and that is inspirational.

    I am currently undergoing tests for lung cancer and have symptoms of Pancoast Tumour

    Andrea x