Mum's gone - scared of what's to come

My Mum passed away on 8th January after an 18 month battle with advanced small cell lung cancer with brain mets.

Things went downhill really fast and I spent 4 nights in the hospital with her in a bunk bed at the bottom of her hospital bed. I was told on the Friday it could be weeks if not days and then on the Sunday I was told it'd be sooner. 

On the Monday night, after the syringe driver, more painkillers etc. to make her comfortable and breathing easy, she took her last breath at 11.50pm with me and my husband right beside her. (Her death was not 'official' until 5.30am on 8th). Her breathing changed just like the palliative doctor told us and we knew it was time.

She looked so very peaceful when she passed. No more pain or suffering. I'd spent the whole weekend talking to her, cuddling her - everything you'd want to do when saying goodbye to your Mother. I was already grieving when she was still with us. I was crying, being sick in the hospital toilets, not eating, not sleeping.

As soon as she passed I felt like I could eat again, and then felt guilty about that. I could sleep again, I felt guilty about that. I just felt immense guilt because of the relief that Mum was no longer in any pain and cancer could not longer rule her. 

For the last week since her passing I've been busy with all of the arrangements - I'm an only child and live 2.5 hours from her so I'm staying with my Nan and Grandad who have obviously been emotional too since losing their daughter. They didn't think they would outlive one of their children.

Because I've been so busy I feel I haven't had the time to grieve properly and I'm being strong for everyone else. I haven't cried much and I'm just scared it's going to hit me like a lorry any time soon. Perhaps it will be at the funeral which isn't until 1st February because of waiting times (busy times?!) 

The stages of grieving worry me. I don't know how I will react, how I will break down, where I will break down, how I will overcome it. 

I feel that when I go 'home' away from family it will all be too much to bear, to go back to a normal working life where everyone is getting on with life as though nothing has changed. For me everything has changed.

Sorry I'm just rolling with words now but wanted to let it out.

Thank you for listening x

  • I am so sorry Jodes for your loss, losing a parent, not sure you're prepared for it no matter even if expected, the most painful thing I have ever been through and continue to struggle to get my head around. My mum passed away 26th September and we all miss her so much.

    I think it would have been a great comfort for your mum that you were both there and as you say no more pain or suffering. People will say that there is no right or wrong way to feel now or in the future, whatever you feel is normal. I like you had the feelings of guilt, still do and having my first counselling session next week for help. Reading your post, I can't see anything you have to be guilty about, not at all and you will be a great comfort for your grandparents at this sad and difficult time.

    I felt angry at everyone, the world really....how could people go on with their lives when my mum had died, I wanted the world to stop turning. The only advice I can give is to take a day at a time and try not to worry about stages of grieving, it sounds an odd thing to say but you have to go with the flow and not try and make any sense of it; there are no timescales and for me, sometimes you think you're ok and it will just hit you and there's nothing you can do, I let the tears fall and my husband just holds me whilst I cry. I cried in the middle of a card shop when I saw Christmas cards for mum's and one's that just said 'dad'. 

    It is a cliche but time does make a difference, not in terms getting over mum's death but trying to accept it and try and live my life in a way that would make mum proud.

    I am further along in my journey than yourself, I hope you will be ok and friends and family can support you....keep posting, people on this forum will come along and understand what you're going through.

    Take care

    x

  • hey there..sorry to learn about your loss.i too have just lost my beauty of a mum to NSCLC on friday..iv had the strangest of feelins,and they change hourly..like u,im worried about the future without her!

    everyone i speak to just tell me to be kind to myseld and take each day as its comes x

  • Hi Jodes. I'm so sorry you have lost your mum. I take my hat off to you for staying with your beloved mother right up to her last moment. Your mum was so lucky to have someone so incredibly kind in her life. It sounds you have already been through so much pain when she was still around, being sick, not eating and crying a lot. I think you have already started the grieving process. But as others say, there is no right or wrong way to grieve so please don't feel guilty about what you feel or don't feel. 

    My father passed away Sept. 2017 and I had a very short grieving process. He had never been a part of my life, so actually, I was grieving the loss of someone that now I knew for sure I'd never have. 

    My mother passed away May 2018 and it was the worst pain I have ever known. I too went through the anticipatory grief for the few weeks before she passed, and then cried almost every day for several months afterwards. I'm at a point now, 8 months later, where I realize that the pain will always be there. So I choose not to think about it all the time. It's a wound that is still very raw. I try to leave that wound alone a bit in the hopes that one day it might heal a bit. But I am not counting on it. 

    Stay strong and keep doing what you are doing, as long as it's working for you. Take one day at a time, and try not to dwell too much on what is normal or not normal in terms of grieving. We are all different. 

  • I'm so sorry about your loss I lost my mum in August 2018 to small cell lung cancer that spread to her liver and brain she was only 60 yrs old  they started chemo but unfortunately the cancer was very aggressive I'm nearly 42 and the pain is unbearable some days I don't want to get out of bed my mum was my whole world I hope it gets easier with time once again I'm sorry for your loss we brought mum home from the hospital to care for her it was the hardest 3 weeks of our lives to see a person we loved so much suffer and there was nothing we could do I hope with time it gets easier.

  • I can hear the fear in your words and I so understand. My mum passed in March last year and I’d constantly get that fear of losing control. I found that counselling really helped be through. My counsellor was so calm and patient and just let me know that what I was feeling was normal (I was having panic attack’s and insomnia having found mum passed away in the morning) and sometimes I would cry so hard and feel so down (like on her birthday and over Xmas) I’d panic that I would never be able to pick myself up again for my work, my husband and my daughter to get on with life. But I did and you will. Just know that it will be a rollercoaster for some time but you’re stronger than you think.

    xxx

  • Thank you all for your responses. This really is a place for comfort and support from those who know exactly what you're going through. Everyone else has great intentions and are really caring but many of them just haven't been in these shoes before. 

    I'm still incredibly busy with arrangements ahead of the funeral a week tomorrow and today, me, my aunt and uncle started sorting through Mum's things including her clothes which was incredibly difficult. We donated many of them to charity but there were items I just couldn't part with. I would look at them and be like, Mum loved this one. And they smelt of her too - her perfume. Things like this really get me. 

    I sit here in her house writing this. Her house comforts me, I don't feel uncomfortable being here. I don't feel sad. I feel like she's sitting here with me on the sofa. 

    Another day without Mum, still a heavy heart. X

  • Going through the things is very difficult indeed. Seeing all the clothes and picturing them in them, is all very real. I had the big solo job of clearing out my mothers entire house. It was incredibly painful. Most of it was old and not in great condition. But I didn't have the heart to just throw everything away. I went through each and every item, washed and donated what I could. I think I needed to say good bye to each thing, as an extended part of saying good bye to her. And also because I just couldn't throw everything away or it would feel like I was throwing part of her out too. Seems silly, but it really was a hard process. Eight months later, and I am *still* cleaning and donating stuff, even though her house has been sold and empty for over a month! 

    My mums house comforted me too, when there was still furniture in it. But once her beloved couch had been donated my heart broke a bit. I cried seeing her house empty because I couldn't feel her in there anymore. 

    I hope your mothers funeral goes well. All the best.