Dad passed away 3 weeks after being diagnosed

Hi,

My dad passed away on sunday following his disgnosis of gastric cancer 3 weeks ago. The cancer had spread to his liver and a number of other places by the time of diagnosis. Dad had always been known as the healthy one so it became a huge shock that he had cancer and that it had spread so much. We knew he wasn't well and he had severe back pain and was losing weight. Worst case scenario we thought it might be cancer of the spine and if that was the case it may be treatable, unfortunately this was not the case. He was still in good spirits and his aim was to come home and die in the comfort of his own home. He had refused treatment as the effects of the treatment were not worth extending his life by approximately 6 months or so. This was his choice and we supported that. The doctor did not give us an approximation of how long dad had left but he did say that the cancer was at an advanced stage. When Dad found out that he had cancer i witnessed him cry for the first time in my 33 years, this upset me a lot and it still does to this day. He always said he wasn't afraid of dieing but to see him cry told me otherwise. 2.5 weeks later we finally got my dad home, which we were happy with. The second day of him being back home, he began to be delirious and aggitated due to the pain. He was then put on a syringe driver. I didn't expect the syringe driver to sedate him so heavily so that he was unable to talk, eat or drink. The day before he had the driver fitted, he was sitting in his chair, chatting, laughing and being his normal self. From being like this to being technically paralised has effected me greatly. Euthensia is illegal in this country but by witnessing the effects of the driver, to me, it looks it's a slow inhumane way for my dad to see his last days. He ultimately died of dehydration which upsets me greatly as i watched him dehydrate and there was nothing i could do about it. I really wish there was a drug that could kill the pain but allow the patient to eat, drink and talk at the same time. I really hope this is something that is being worked on as i wouldn't wish anyone to witness what i witnessed. I stayed with him for 2 days and 2 nights before i broke as i could no longer mentally cope with seeing my dad slowly die, especially after seeing him upbeat 2 days prior to this. I said my final goodbye to him on saturday evening and he was making noises as if he could hear me, i really hope he could. I'd like to know other peoples thoughts on syringe drivers and the effects they have on the patients and their loved ones. To me, it begs the question as to whether euthanasia is a more humane way to die? Also, i'd be interested to hear about how people cope with the death of a loved one such as a father figure. I miss my dad so much already, he was my idol.

Parents
  • Hi Gonefishing

    When my mum died 30 years ago they put in a syringe driver and we really werent told how quickly it would sedate her and because of this my brother didnt get to see her awake again before she died, I'm so sorry to hear that this can still be happening to people.

    At the moment we are facing the possibilty of my husband not having too much time left, he was diagnosed with stage 4 Lung with spinal mets at the age of 54 in October, last week we found out it has spread to his brain.

    Reading your post is heartbreaking but i thank you because it has reminded me of what happened to us and to make sure that before it could happen again that especially our daughter has her time with him before he dies.

    Yes they are great devices because they let our loved ones die without pain but i know to this day my brother is still affected by what happened.

    XX

     

     

     

     

     

  • Hi Missaloy,

    First of all, i'm really sorry to hear about your mum and what you, your husband and your family are going through at this moment. Until cancer effects people close to you, you really don't understand the destructivness of it. Your husband is young and it's heartbreaking to hear your story. 

    Regarding the driver, i really do not know what to think of them, even to this day but i do take comfort that my Dad was not in pain when he passed. What hurts me more and also angers me, my Dad was in hospital for a month and they didn't control his pain. I hope your husband is made as comfortable as possible.

    I'm hear to talk, we all are. Take care

  • So sorry to hear your dad was in pain in hospital. My husband was in hospital for 3 days last week and they wouldnt let him self administer or let me do it but when we asked for something for pain we sometimes had to wait for ages, I know they are busy and i dont like to critise nurses because they work so hard but for patients who administer their drugs at home every day there should be something in place so they are never in pain.

    As you have said you're hear to talk, so am I, no matter what age you are its never easy to lose a parent. X

Reply
  • So sorry to hear your dad was in pain in hospital. My husband was in hospital for 3 days last week and they wouldnt let him self administer or let me do it but when we asked for something for pain we sometimes had to wait for ages, I know they are busy and i dont like to critise nurses because they work so hard but for patients who administer their drugs at home every day there should be something in place so they are never in pain.

    As you have said you're hear to talk, so am I, no matter what age you are its never easy to lose a parent. X

Children
  • My husband passed away on Saturday. He started coughing early March and was only diagnosed a week ago with lung cancer. He deteriorated within a week and died of multiple metatastes. How is that possible?

  • My mum was diagnosed it’s lung cancer and mets on the 25th of May and she is now deteriorating. It really is awful and quick and such a shock. It seems lung cancer is very sneaky! Thinking of you xx

  • I am so sorry that your husband died so soon after been diagnosed. I can only begin to imagine what you are going through at this hard time. Lung cancer is trully a dealy silent killer, they reckon my husband might have had it for a couple of years before he started to get pains in his back and side that we discovered it had gone into spine and now its in his brain.

    You are in my thoughts and i hope you are coping

  • I'm so sorry for your loss and your story brings it all back. I still cannot comprehend how quickly that viscious disease escolates. My fathers deterioation was very similar to your husbands. My thoughts are with you at this time and please feel free to talk yo us when you're ready.

    Take care

  • It really is a shock when you see how quickly they deterioate. My thoughts are going out to you and your mum at this time. We're all here for you when you're ready. I think my father had cancer for years before it fully grabbed hold, i just wish we could have spotted it sooner. Stay strong at this difficult time. 

    Take care

  • Hi all, It's me again. It's been 19 months since dad passed away. The raw emotions of Dads passing are now being replaced with happy memories of what a wonderful man he was. He makes me smile every day. The reason I have to post on here is because me and my family are going through it all over again. My beautiful mother has now been diagnosed with liver cancer and the specialists have said that it's likely to be secondary. This news has come from nowhere, she's lived a healthy life and none of us saw us coming, especially her. This case is different to Dad's as Dad was 85 and was in unbearable pain. Mom is younger and she has the strength to deal with treatment. We're going to fight this. I hope you are all healthy and well. Take care.