My son was 28 when diadonised with NH Lymphoma. We were told it was agressive, but treatable and curable. After 6 months of chemo the PET scan showed no reduction in the tumour. After 2 months of another chemo we were told there was little that could be done. In March 18 he was put forward for a potential CAR T trial. In April he was accepted, in May he had the cells extracted which were genetically modified. Because of a delay in the programme (the person ahead of him fell sick) the local hospital decided to give him another chemo sesion. Following this he fell ill and was in the MHDU. In July he was admitted to the hospital in London for the CAR T transplant, which regrettably didn't take. The hospital carried out further tests and said that he only had weeks to live. He wanted to die at home (Inverness) and special ambulance bought him home. 48 hours later he died. He was a very fit, active, non smoking, had the occassional glass of red wine with dinner, clean living, honest man. Never said a bad word about anyone and was a good friend to many. Not only was he a talanted wonderful son (won 2 gold medal awards from the Scottish Food Awards) but a very good friend to me. I'm absolutely heart broken and after the 5 weeks in London and everthing that has happened since am shattered. I don't know which way to turn.
