My mom passed away five days ago

My beautiful, sweet, kind and amazing mother passed away five days ago. It still doesn't feel real, despite doing very difficult things like organizing the funeral etc. 

She had been in and out of hospitals for three years due to two broken legs, breast cancer, COPD and finally metatastic lung cancer. But she was fiercely independant and strong. She never complained about being stuck in a hospital for months at a time. She listened to her radio where they played news and current events all day. And she also read news magazines and crime novels.

She always got better and then went home. But when she went into the hospital for the last time in the middle of December she just kept getting more bad news. But she was fighting through it. Then when she was in the rehabilitation centre in March she fell and broke her leg, so it was back to the hospital again. She was stuck wearing a giant boot and had to keep both legs in a weird position while the leg healed. Sadly, she was never able to move her legs again. 

But through everything, she was always in good spirits. Sometimes I would get to the hospital to visit and she'd be discouraged and fed up. But after I'd visit for a while she always felt better! Even after receiving a terminal cancer diagnosis in February, she was still optimistic that it could be treated to slow it down. She still believed she was going home. Despite not being able to walk. 

We all felt hopeful. Or maybe we were all living in denial because it was too painful to accept. I cried for a month when she got the terminal diagnosis. But after that, I stopped thinking about it because she seemed to be doing so well! We'd have good conversations at the hospital. Normal visits. We never, not even once, talked about her illness. Or about the future. Or about what her wishes were. It was all too morbid and it seemed more important to just enjoy each others company. And she never complained about any pain. 

I honestly thought we'd get a couple more years together. But three weeks ago she took a sudden bad turn and ended up in the ICU on a respirator. I thought she was going to die. The doctors implied that they would be removing the ventilator in 24 hours and she would die. It was horrific. It was also weird, because the first couple of days when she was on the ventillator she was still alert and trying to talk to us. But it was hard to understand her with the mask. But after 4 or 5 days she seemed to get a lot weaker and mostly had her eyes shut. When she spoke I couldn't understand what she was saying at all. She even became completely non responsive and unable to eat or drink. I thought she was dying. Yet, the doctors and nurses said that her vital signs were good and that they were weaning her off the bipap machine. It was the worst roller coaster ride of my life.

She spent ler last week of life in the palliative care section in the same hospital. The doctors made it clear to her that she was dying. It was awful, because my mom could fight through anything. If there was a chance that she could be treated and go home, she'd still be alive and fighting! But they gave her nothing to hope for. So she gave up. We had one great day on Mother's Day where she seemed almost back to normal again and we thought she'd continue to improve. Once again, I felt like we'd have more time together. I was now just hoping for weeks, rather than months or years. But I'd take what I could get. I never dreamed that I'd lose her just four days later!!!

We have a tiny family. She raised my sister and I on her own. She had no siblings. All her family is dead. Some distant relatives live abroad. I'm left with my sister and her 3 children as the remaining family I have in this world. 

The only thing keeping me from losing it completely is knowing that she is now free. No more problems. No more breathing difficulties. No worries at all, ever again. The last time we spoke she told me that she was worried about leaving me. She knew that I'd be pretty much alone without her. But I told her that I'd be ok. That I just wanted what was best for her. I didn't want her suffering any more, especially not just for my sake. 

 

Parents
  • So sorry for you loss I feel your pain my mum passed from bowel cancer 5 week ago. Like you said the ups and down of a terminal illness are so hard to bear thinking there going to get better as they have a good day but really you know what the end result is. My mum too was too point blank told your dying by the doctors which I still don't know why they have to be told this and over and over. She knew what was happening she wasn't stupid and like yourselves we never discussed her illness in front of her. Can I ask how old your mum was? My mum was 71 although I still think it was too young. I hope you are close to your sister and children or you have good friends as it is such awful time and I believe I will never fully get over it. Kirsty
  • Thank you Kirst78. My mom was 79. I feel she was too young as well. I'm not so sure why doctors have to tell patients they are dying. I mean, I'm not saying that patients should be told they are fine either. But to tell someone they are dying is a bit harsh. I know that when she heard that, she really believed that she was actually dying, as in a few days. 

    It absolutely broke my heart. Although she was stage 4 lung cancer, they only just saw a spot in November. I have a hard time believing that the cancer was literally killing her that week. The doctor said that the cancer made it harder to fight the COPD.

    I believe it was the high amount of opiates they gave her that killed her. She asked for them, but it was horrible. During a visit two days before she passed, I thinks she was experiencing what I believe is termed "terminal agitation". She was in a rage. It was morning, and apparently with COPD mornings are hardest. She was desperately wanting some medication because she was so anxious. But she wasn't in pain. She was struggling with her breathing, due to not having fully recovered from her set back, but she was alert and actually after I was there talking to her for a while, giving her some of my nice coffee I had brought from home, she had calmed down! I was quite devastated when the nurse came along and injected her with opiates. Because within half an hour she was in another world. Her eyes were rolling into the back of her head. We never had another conversation again. 

    When the doctors told her that she had untreatable terminal cancer I think she was a bit in shock. She kept asking what the point of fighting was when her breathing wasn't getting better and that the cancer was going to kill her. She was terrified! About a week before she passed, when I arrived for a visit and asked how she was was, she loudly stated "I'm very sick and ready to die!"

    Anyway, I guess there's no point analyzing all the moments of her last three weeks. It was very difficult, that's for sure.

    But I guess maybe a small positive out of it all is that she really did only suffer for three weeks. That whole experience of being stuck on a ventillator in ICU for ten days scarred her. I mean, it was so horrific and even though she was asleep for a lot of it, she was awake enough to remember the trauma. She did say that she never ever wanted to go through that again. And she was worried that there was a definite possiblity that it would indeed happen again. One of the doctors said it was common for it to happen again. Sometimes twice a year. 

    I'm a bit worried about having a lack of a good support system. But if I feel like it's getting to be too much, I will seek out help. 

  • I'm 5 weeks down the line and I'm still analysing the last three months of her life and what we or the doctors could have done any different. I suppose realistically not much the cancer was just too aggressive my mum lost all use of her legs etc for the last 3 weeks and was bed bound in and out of consciousness lots of the time especially when she was started on the syringe driver. Its just so sad but like yourself our mums are no longer in pain my mum suffered with excruciating stomach pains due to the cancer and where it has spread. Take care and be kind to yourself lots of love to you. 

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  • I'm 5 weeks down the line and I'm still analysing the last three months of her life and what we or the doctors could have done any different. I suppose realistically not much the cancer was just too aggressive my mum lost all use of her legs etc for the last 3 weeks and was bed bound in and out of consciousness lots of the time especially when she was started on the syringe driver. Its just so sad but like yourself our mums are no longer in pain my mum suffered with excruciating stomach pains due to the cancer and where it has spread. Take care and be kind to yourself lots of love to you. 

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