Hello Ma3, I noticed you'd not received a reply to your post and wanted to stop by to see how you are? I read your message yesterday and was really touched by the relationship you described as having with your late husband; my sincere condolences.
It sounds like you're having such a tough time of it, and I can see why you would want to reach out to others who might be going through something similar. I'm sorry no one replied in the time since you posted. I did wonder if, because of the length and detail in your post, some of our members might've been taking a while to read and digest it all?
Would you consider posting again in the Coping with loss section of the forum, and perhaps putting something in the title about how you're feeling? We can't guarantee that someone will be along to respond, but I think you'll find a few other people in that particular bit of the forum who are going through - or have gone through - loss. They will in some cases, no doubt, be able to empathise with the lack of support families sometimes give, too.
Please feel free to post again if you wish to, or to reply to other's discussions.
Sorry you feel this way. Most people on the page are going through some really tough times themselves. Also not everyone is on the page every single day. I myself only come on every now and again. I lost my dad to NSCLC 18 months ago and it's been a tough journey.
Sorry you didn't get a reply, I tend to reply if I think I can help in some way or if I notice no-one has replied to a post after a day or so as I'd hate anyone to feel ignored.
I.m soory to here about nsclc..my sis also diagnose lung cancer last stage...this is is very horible stage of my life...i can under stand ur feelings...how this is so painfull stituation of a person who is figting with this disease ....did ur husband got chemo
Yes he got chemo. Cisplatin and Vinorelbine to begin with. Hard hitters those platinum drugs. 1st cycle he was pretty sick, but by the 2nd one, we'd figured out better anti sickness regimes especially Akynzeo . I am sorry for any one going through this on any level. You have to keep your hope up that it will work and continue to work. So he had 4 cycles , no Adverse Events - even managed to eat pretty well through it and then they said the toxicities - esp I think to heart and of course all GI tract, would outweigh the benefits, and they re scanned and had told us it was pretty much gone, or that it would be difficult to distinguish anything much beyond scar tissue. So we were delighted, hopeful. Sadly, as in many case, it came back. Next chemo was Docetaxel (Taxotere) which was supposed to be an 'easier' ride than the platinum drugs. But obviously his system had been weakened by the earlier treatment and the Docetaxel really caused damaged in intestine - though he had issues with IBS a long time before, So I would say, make sure they check your GI tract before starting this chemo. I think one of the problems with chemo, is.. like when you're pregnant (not the joyful bits) but if you are suffering from ANYTHING, they put it down to 'you're pregnant', like that with CHEMO, and of course the Chemo is seriously heavy , but it is not ALWAYS just the chemo. They need to look at other things too. Just my thoughts.
Dave, I think I posted just back to you, but wanted to say thank you for beaming in. It's just that sometimes hours can feel like days when you're dealing with cancer, before/during/after. All very raw and painful having lost my husband way too young to NSCLC and dealing with all that and 2 kids still at school, it really floors you. Will try to keep up some posts. Exhausted .. again , today.
