New to forum - Junctional Oesophagus Cancer

Hi  I am new to the forum.

I lost my much loved husband, my best friend, my soulmate to this awful disease on 10th September 2016.  I miss him so so much there are no words.  I know he has gone, but still feel he will come home, I want him to come home.  I can't believe that my life with my husband in this world is over.  I don't know what it is all about or what it is all for anymore.  He was diagnosed with Junctional Oesophagus Cancer Easter 2015.  My dad passed away Christmas Day 2014 aged 84 from Oesophagus Cancer and now my husband has gone too.  All the time I was helping dad and my husband was always there with us helping him, all the time we were at hospital appointments etc this awful disease was growing inside my husband.  I am lucky we have two children, my daughter and our first grandchild were and living and still are living with me.  Our son and his wife are expecting their first child.  My husband knew our second grandchild was on the way and was at the birth and spent just 6 months with our first grandchild.  He is such a loss to them and to us.  I have been so moved by the forum.  Its easy to say but never give up hope, be as positive as you can, and if your not being listened too shout and shout change doctors refuse to leave until your listened too and more importantly until they act on what you are saying NOW.

 

  • I am so sorry for you.. I had oesophogeal cancer in 2012..I had my oesophagus and part of my stomach removed in 2013.. everyday I thank the Lord for the discovery of it as early as it was but I live in fear now of it reoccurring or "popping" up elsewhere.. no one understands how I feel.. I'm getting married again in Sept and when it should be a happy and exciting time it's a fearful time for me...I've been docs this week as I get severe stomach pains after I eat and I'm bleeding when I go loo..all the docs have said is they think it's IBS and are treating me for 2 weeks to see how it goes..given my history I was hoping for a bit more understanding.. it doesn't matter how much they say to you your back to being at risk of cancer as the next person it doesn't help..when I hear of cases such as yours I can't help but feel a little guilty for serving this dreadful disease...your pain will ease in time..you just have to focus on your children and grandchildren...my heart goes out to you ..stay strong x
  • Hello Kizzyb Please don't feel guilty for surviving so glad you have really mean that and ir gives hope to others. Your understanding of how I feels means so very much. Without being alarmist though I am horrified to hear of your pain and passing blood and being told this IBS please get a second opinion, I am in no way suggesting that your cancer has returned god forbid that happening non the less you should be scanned surely given your situation. Maybe you should go back to docs and insist on a scan to put your mind at easy and if necessary try to deal with what ever is going on. I wish you well take care and enjoy life too you deserve it you have been on such a dreadful journey. Best wishesx