Secondary breast cancer in the liver

My sister passed October 4th with secondary breast cancer in the liver. Had breast cancer 6 years ago. Chemotherapy mastectomy then radiotherapy and tamoxifen for the last 6 years. Every year going for her annual mammogram all clear we celebrate the all clear. Had bone scan about August time at routine follow up again all clear. When through all this it was growing in the liver.  Went into hospital with sicknesses bloating and pain right side. Liver function bloods we're off the scale on September 20th diagnosis confirmed 3rd October told she had weeks we were called to the hospital the following morning and she passed that morning. Sorry for long post I am just struggling on why not a full annual CT scan if there is such a risk of secondary cancer. We were never explained any of this 

  • I don't know what the usual protocol is. 

     

    My partner has Secondary Breast Cancer and at the time of diagnosis we were told that there were different types. Some spread quickly (like hers), others stay in the breast. I suspect that they saw that cancer as unlikely to spread otherwise they would have offered a blood test. (There's a marker in the blood; ca15-3) and if that is raised it's likely that the cancer is spreading. (I say "likely" as our oncologist has stated that this is not a clear indicator). 

     

    You could write a letter to the hospital seeking answers and if they won't share information because you aren't the patient then ask for their usual protocols. However, my sense is that you are looking for bigger answers  

     

    It seems that as long as the patient is having treatment to keep the cancer under control )which she was), then they are doing all they can. We could question whether staying on the same regime for six years is the best option , but perhaps that was what stopped new cancers appearing in her breasts, even if it didn't stop the original cancer from spreading.  

     

    My partner was receiving a treatment for the first two years which was then changed as her cancer had spread some more and we were told that treatment usually worked for only two years  at one time she was taking Tamoxifen  was this the one that usually only worked for two years, I can't remember;  and if it was does it help? 

     

    You are obviously in pain, but perhaps you are asking the question could "they" have done more because you are wondering... could you? I love that you had celebrations when the all clear came, you clearly showed her love. You could pursue complaints etc but it doesn't change the outcome and personally I think that instead of spending an hour writing a letter you could spend an hour doing something lovely (a walk in the park for example) with someone you love. Losing an important person teaches us to value special moments.  

     

  • I had treatment for breast cancer.  Like you I questioned why no annual CT scan. I was told it was not appropriate as regular scans exposed the body to radiation. Also although not used as part of explanation I suspect it's not cost affective. Really until you have had the disease people don't really understand the fears and uncertainty of cancer. It's hard for you all.  I do believe if the powers to be had experience of cancer diagnosis the decisions about treatment may well be different. Take care. A

  • thank you for your reply you are probably correct I am looking for bigger answers. My sister was told it was an aggressive form in the beginning but had been contained. I know I will always question 'what. if" but I will continue to fundraise in my sisters memory and hopefully the pain will ease
  • Totally agree I do believe it's probably more a cost issue as I am sure if given the choice my sister would have taken the risk each year and had the CT scan but it may not be. Thank you for your reply and take care x 

  • Hi everyone my name is Angela from Northern Ireland and just wanted to say this chat room is what I'm looking for.my story is something similar in 2019 .April I got my 5 year clear of breast cancer.So delighted but June I didn't feel right.went to hospital and had a scan just to find out it had spread and now stage 4.They should offer a ct scan to everyone else.Nhs here are brilliant but there is only so much they can do. Bless them.