I said goodbye yesterday.

My situation is a bit unusual. I am 25 and my dad is 80. He is 80 years old but he had the body of a 65 man. He was still working and cycling everyday. We played tennis together 3 times a week.

In the end of august, he started complaining about some pain in his arm and back and he had a hard time sleeping because it hurt a lot. Not too long later he was diagnosed with stage 4 lung cancer. They did a second biopsy and found out he also had bone cancer and his liver was also affected. It was not curable but they said they could reduce the masses with chemo and radio.

I progressed really fast. When he first entered the palliative care room at the hospital, nurses thought he was working there. After one month, he started looking his real age, 80. His situation degraded so fast that they never started chemotherapy, because they say it would do more harm than good, his body was not strong enough to support it anymore.

In the end of october, not only had he lung and bone cancer, his spine collapsed, he could not walk anymore or change position by himself, a mass on a blood vessel paralysed his left arm, he had blood in his bladder so they used a machine to make him pee, his tongue and mouth hurt him a lot. He also started having very frequent panic attacks when he could not breath for 1min.

He was on strong pain killers and a ton of pills and injections. But mentally he was still 100% there. That's why it was so hard to let him go.

Last week he started asking the doctors for a way to accelerate the process. He could not stand the pain and staying in the room waiting for death. They talked to us about sedative medication. He asked to be medicated for sleep until the end. 

Yesterday was my last day with him. He stayed calm until the last minute, even if I was crying a lot. He said he loved me and he was proud of his whole family. He said everybody will have to go through death. He said goodbye. And I left. Now he is sleeping at the hospital and I don't know if I will come visit him again. They wont be feeding him or hydrating him anymore. They give his body a couple of days, one week maximum. 

I already miss him. It is so hard to accept to let him go. Especially when he is so conscious and we could have the same conversations we usually have. But I had to accept his decision. I still can't believe there is nothing we could do. Part of me was still hoping for a miracle. 

I can't stand anyone telling me he was 80 so it's "normal". You could never have told he was 80 if you saw him 3 months ago. 

I don't know how I will do without my dad.

I am just starting my career, I don't have a boyfriend or children. My family is my parents. My world is my parents. I feel like I lost my security. My big strong man who would rationalise all my problems. Make lame dad jokes that would still make me laugh so much.

Also I don't know if I should go see him when his body stops. I don't know if it's better to have this closure or if it's better to remember him for the last time I saw him yesterday evening.

I am lost without him.

  • Hi Justine,

    Welcome to Cancer Chat allthough I am so sorry to read about your dad. My dad died last week and it was hard for me as he lived in Canada while I live in England. He was 93 and has been fighting illness for the past four years. We only met for a month 23 years ago when me and my wife spent four weeks out there with him. (I am 72) Everyone said how alike we were.

    To lost a parent is very hard especially when you love them like you do. I also lost my mother several years ago. I wondered how I would cope but I did, just as you will. I will not deny; its was painful but what I did was to remember the good times we shared and the laughs we had and that helped me, just as I know it will with the loss of my dad. You will cope trust me and those many happy memories you have are something nothing can take away from you.

    Wishing you all the best. Sending best wishes and kind thoughts your way, Brian.

     

     

  • Hello Justine and welcome to the forum.  My heart goes out to you as you are so young to be coping with the shock of your beloved Dad's illness and to find it is terminal too. As Brian said cope you will and it is amazing where we get the strength from to cope with major changes in our lives.  As a family we had to decide to terminate treatment for my mother and what a decision that was to have to make. Whilst at one level you don't want your loved one suffering at the other you want to hang onto them as long as you can.  It It is a very selfless act to let them go and only you can make the decision as to what you should do now. Go with your heart love and it will be the right decision.  Apart from this forum where you will get support there's bereavement services who will be able to support you as you take this very sad and difficult journey.  My thoughts are with you Justine and please feel free to come on her to 'offload' at any time. Love Tina.

     

  • Thank you very much for your reply, Brian. xx

  • Thank you Tina, you are right. Thank you. xx

  • It helps to write down what happens, so :

     

    Today was very hard. It's like I was half awake the whole day. And exhausted. 

    I had to go give my dad's work laptop and work keys to his employees at his office. I chose to do that today, so it would be done. I knew it would be hard to go back to his office. 

     

    I always told him I loved that he worked downtown, just in front of my job. It always felt like a small space like home in the middle of the chaotic city. I would stop often to see him at his office when I was around. We would go for lunch sometimes. 

     

    So even though I felt so heavy and tired, I chose to go to the office in the afternoon. It was exhausting to be around all the people walking fast, laughing, screaming...while I just felt like being alone in a calm environment.

    I gave the things to one of the employees. I was fine until he asked how my dad was. His employees knew the situation but they didnt know he made the decision to leave yesterday. To that question I just froze and had to take a moment alone before I could speak again. I just made sure everything was ok, then I left.

     

    I am back home and I feel like I have no energy. When I eat it's like I doesnt taste anything. I have a constant, mild headache and nausea. I guess I will just sleep now.

  • Hi Justine,

    I am so sorry to hear about your Dads cancer. I have been through cancer myself and lost my wife to it recently.

    All I can say is that in my case I was glad that I was with my wife at the end. Everyone is different and copes with situations in their own way and I wouldn't dream of telling you what to do; I just what to share my experience.

    I wish you all the best for the future.

    Brian x 

  • Hi Brian, thank you very much. xx And thank you for sharing your story.

     

  • I still have no news of the hospital, so he is probably still asleep.

    I am more and more convinced that I don't want to see him that way. It will just be another step to closure when they call.

     

    Today I went to his appartment to take small things he left me. It was so strange. Heartbreaking and comforting at the same time. I also took his tennis shoes. Just for the meaning it has to me. And some sweaters because they have his odor. He was such an orderly man. Everything in place. 

     

    It's crazy how all the memories came up with each object I looked at. Even small things like the popcorn bowl that reminded me of when we watched movies together. His yellow shirt he wore at the fancy restaurant he took me for my last birthday, and I was teasing him about. Also, taking back the gifts I gave him... that was hard.

     

    Now I have parts of him everywhere in my appartment. Everything reminds me of him. Not a minute without thinking of him. I don't know if I will ever stop thinking of him.

     

  • Morning Justine

    I can see by the time of posting that you are not getting much sleep!  It is good that you feel able to write down and share what is happening at the moment.  I also kept a jumper of my Dad's for many years and just couldn't part with it. Like you say items/ possessions bring back many meaningful memories and to be honest I probably still have the jumper in the loft and Dad died 31 years ago.  It must be very difficult waiting on 'the call' and in a rather strange way it will probably be a relief to you when it comes.  You are currently on a huge emotional rollercoaster and hopefully you are managing to get your thoughts together as to how you will manage the next stage of the process or is it 'one day at a time', my late mother's motto. It was even played at her funeral.  Although it is a very painful topic to discuss, did you manage to have that conversation with your Dad and know his wishes?  My sister works in that industry and says it makes  such a difference when relatives know the wishes of the deceased.  

    I so wish I had known about this supportive forum when I was diagnosed with cancer.  My thoughts are with you and I'll continue to follow your post and we are all here for you. Tina.x

     

  • Hi Tina,

    I am in Canada so I think it is 5 hours earlier here. I actually sleep a lot! I always feel tired.

    I think it is very touching that you kept your father's jumper. Small things mean so much.

    I woke up to a message from my step sister who told me he left tonight around 2:40 am (7:40).

     

    Long story short my dad had two wifes. My mother is his second wife. There's always been tensions between the two families. Now I am getting closer to my step sister and step brother who are much older than me and they take care of the more practical things. 

     

    I don't have the details about what his wishes were. My stepsister knows and she said she would let me know soon. 

     

    Thank you Tina for your comments and advice. It gives me strenght. xx