Hi I'm new to the site, my hubby passed in 2017 cancer it started with a mouth ulcer he had treatment over 5 years was then told no more trials it was end of live I went to our surgery they have posters all over the walls about where you could find it not one poster about mouth ulcers 3 weeks we went every week to the doctor who then sent a slow letter by the time he got an appointment it had started eating his face away
He had Jack Russell's they all passed from cancer within 2 years of him passing.
My son has hereditary hemochromatosis, is was found on holiday by German doctor they did tests and gave him the results told him to go to his doctor to get the treatment he had the treatment over 5 years now they tell him its end of live there are no more trials. He lives in Spain I live in East Yorkshire UK
His son my grandson has been told that he also has hereditary hemochromatosisis he lives in Cambridge. The hospital in Cambridge are looking after him. He now as a baby son how long before he is told the same
In Hull where I am my other grandsons took the information to there doctors who just dismissed their concerns and binned 8 pages of information given from the Spanish hospital
Dont know how much longer I can cope, I watch my grandsons knowing that they could be next. I know that if found in the early stages there lives can be extended.
Sorry for the long post but its eating me away some doctors not listening. Then coming to the funeral and telling me they were sorry that they had not acted sooner.
