Losing a partner to myeloma.

Hello all. My name is Jay, and I have been with my Alan for almost 20 years. My Alan and I had made the decision, back in 2020, to move to my native Greece (my Alan is British). In late 2022 my Alan was diagnosed with myeloma and we were told that it is treatable and a chronic condition that--if properly treated--does not affect one's life expectancy. We were told this by an oncologist....Throughout the whole of 2023 my Alan was undergoing chemotherapy and his body was so resilient and strong...he didn't have any tiredness or loss of energy, no kidney failure....And then in January/February of 2024 we suffered a terrible complication whereby my Alan had started losing movement in his legs and they were too weak for him to walk...His Greek supervising doctor had performed a lumbar puncture and discovered that some myeloma cells had been formed inside his spinal cord fluid....He then prescribed a different course of medication, accompanied by periodical lumbar punctures with anti-cancer medication....In February or March of 2024 and April of 2024 his doctor had ordered us to undergo a number of MRI scans in order to check his spinal cord...Each and every time my Alan underwent those MRI scans, his doctor flatly refused looking at the images of the MRI scans. He only wanted to read the text diagnosis of them...Each and every time he would tell us that things looked OK and that my Alan's spinal cord had a few myeloma-related lesions that had started healing....The last lumbar puncture we had was in September 2024 and again his doctor told us that the treatment seemed to be working. My Alan was also having regular fortnightly and then monthly appointments for blood tests as well as abdominal injections with medication...Right up to December of 2024 his doctor was telling that everything looked OK in the blood tests....My Al and I flew back in the UK on 2 January hoping to start a new life near our friends and family as well as receive better treatment with the NHS....We managed to have an appointment booked for 22 January...Sadly, my Alan had to be hospitalised at on 10 January and on 16 January I received the phone call that nobody ever wishes to receive. I was told by the consultants that they had performed one single CT scan and had found a massive tumour in my Alan's spine that had started destroying his lungs. My darling Alan's soul departed his body in the early hours of 17 January with my laid by his side, holding his hand....I have spoken to friends of ours who have had their own trials with cancer and their loved ones. I've spoken to people who know cancer specialists in the NHS and the common verdict is that my Alan lost his life to criminal medical indifference--not even merely negligence.....If my Alan's tumour had been detected earlier with proper monitoring and diligence he would have been alive today....He would have undergone radiotherapy, different chemotherapy....We have been so cruelly, so heartlessly failed...I feel powerless to give my Alan some justice because the murderous negligence took place far away from the UK....in a country that doesn't have real justice...I was told by an acquaintance who has a friend in the NHS that just about any tumour is treatable, the earlier you discover it. The longer it is left undetected or treated, the more damage it does......How do you really cope with the knowledge that somebody who is supposed to be saving lives basically has murdered your loved one through repeated and wilful refusal of vital monitoring like MRI scans?

  • Hi Jay and welcome to Cancer Chat.
    I just came across your post and wanted to offer you my sincerest and most heartfelt condolences for your loss.
    After going through so much together it must have been absolutely heart-breaking to lose your beloved Alan this way, but please know that our community understand just how painful loss can be and are here to listen if you ever want to share more.
    I'm sure some of our members will offer their support and advice to you soon but in the meantime, I just wanted to share some information we have on coping with grief. I really do hope it will help you at this time.
    I know nothing I can say can take away the anger or the pain but my thoughts are with you Jay, and I wish you strength in the days ahead.
    Kind regards,
    Steph, Cancer Chat Moderator