I wasn't there when my dad passed away this week

Hi, my wonderful dad was diagnosed with stage 4 lung cancer in October last year, and passed away aged 82 on Tuesday this week. I took him to all his appointments he ever had over the last few years due to other health problems, arranged and took him for his covid vaccinations, did his shopping every week throughout the pandemic, and tried to take him out to do nice things whenever he felt up to it (this became less and less since October). 

As time went on this year, he withdrew from life, and when I went over or called him, he seemed like he didn't want to talk or be disturbed if he was in bed. I tried to respect this and kept conversations short and there was a spell of three weeks in March where I didn't go over at all (due to my son being ill) but rang to check on him. When I finally went to his house, I found him in bed in an absolutely terrible state - he had obviously taken himself to bed at some point during those three weeks and not got back out - not eaten, drunk, confused and hallucinating - he was a mess - it was absolutely devastating to see and I couldn't believe this had happened to him after I'd been speaking to him just a couple of days earlier.

I called his doctor to come and check on him who said it was a social issue rather than medical, but I wasn't convinced. I called his care team and social worker to come and they all agreed he needed to be in hospital. He spent three weeks in hospital, was rehydrated, and a scan showed his cancer had spread everywhere in his brain. I went to see him every day and as it was obvious he couldn't return home, I arranged for him to be in a nursing home 5 mins round the corner from my house.

The staff were amazing there and took care of the personal care and medications while I was able to visit every day, sometimes twice a day to just sit with him and talk to him. On Tuesday 24th May, I sat with him all morning and saw that his breathing had changed slightly and his face was a different sort of colour. I had to return home to walk my dogs, and I had some lunch before going back, aiming to be back there for 2.30. I'm not sure why but I didn't rush back - for some reason, I took my time at home and was just getting ready to go back when my phone rang at 2.35. It was the nurses to say dad's breathing had changed again and to come over. When I arrived, he had already passed away at 2.30, they just didn't want to tell me over the phone. He looked so much more peaceful after the horror of watching him slowly die and everything gradually failing over the last five weeks, he genuinely looked like he was asleep. They told me a nurse was in the room when it happened and I sat with him for over an hour afterwards, just being with him at peace. 

Now however, I can't stop wondering why I didn't rush to get back that day and be at his side as he left this world, and it's starting to really affect me. I cry every time I think about that day, and wish desperately that I had just done my jobs I needed to do quickly and returned there for when I had planned then I would have been with him. I can't understand why I almost went into slow motion, despite knowing his passing was near. I'm glad there was someone in the room with him, although seeing him that morning, there wasn't much awareness - his eyes were already closed and if one opened slightly, it couldn't really focus. But I feel as though I have been on overdrive for six weeks, rushing over to see him after finishing work, just being with him as much as possible, and then the moment he may have really needed someone there, I wasn't with him and it makes me so so sad. How can I forgive myself for this?

  • Hi Susie,

    I am sorry about your loss and that you're feeling this way.

    I was in China when my mum passed away last month, I booked the ticket for two weeks today thinking she would still be here and I would have time to return and hug her one more time but it was too late, she passed away quickly, saying that, she knew I loved her and your dad knew you loved him and you did everything you can to be with him and to make his life better whilst he was still here.

    It's going to be a hard hard grieving process for you, for me and for everyone else who has lost a parent recently, now and well into the future. You can't second guess what's going to happen and hindsight is always smarter than us, if we knew what was going to happen then we would make different life choices but none of us have that gift I am afraid.

    Personally speaking, I know now my mum is at peace, she doesn't have cancer anymore and that she is looking over us and looking after us which I am sure your dad is doing now, I am sure he will be looking down on your and as far as he is concerned, there is nothing to forgive, he has a wonderful daughter who tried her best to be with him until the end and that one day, you will find your peace, I wish you well and wishing you strength for today and into the future, take care.

     

     

     

  • Hello Susie, so sorry for the loss of your Dad.  I experienced the same thing when my Mum died of cancer.  Me and my sisters were exhausted so we went home for a break and then we got a call from the hospital at about 2am to say that my Mum was dying.......we got there about 5 minutes too late.  You mentioned that you were moving almost in slow motion:  Susie, what happened is that you went on auto-pilot.  We do this when we are being forced to deal with something traumatic.  The same thing happened to me, because I was my mum's main carer.  I almost felt like a machine at times, going through the motions and doing what I knew had to be done.  It's how we stay strong in a crisis.  This guilt you are now feeling Susie is a very natural part of the grieving process, and in time I promise you that you will realise that you did everything you could possibly have done for your Dad.  When this happens you will forgive yourself, because you will understand that there is nothing to forgive yourself for.  Take care Susie, sending virtual hugs, and remember, you will get through this, I promise you, Violet, xx

  • Hi Susie, there is no need for you to have to forgive yourself. What an amazing daughter you have been, you were with your dad taking him shopping, to his appointments and just being with him. He knew you loved him very much. I really do understand how you feel. My mum passed away in a hospice and the day before she died the hospice said I could stay in a relatives room if I wanted overnight, I really didn't want to leave her. .I decided not to stay and went home with dad. We had a call in the early hours of the morning to get to the hospice as mum had worsened, I got dressed and even brushed my teeth whilst dad was waiting for me! When we got to the hospice mum had already gone. For years I beat myself up about not rushing back, why on earth did I have to brush my teeth? Then my sister had Glioblastoma, a brain tumour, the same thing happened, she was in a hospice and we got a call to say we needed to get there and I even remember thinking do I brush my teeth this time?  When we arrived at the hospice my sister was still with us and for 6 hours I sat with her and her husband telling her it was ok for her to go. Why did I do that? it wasn't ok, I wanted her to stay. Watching her take her last breath will stay with me forever, the worst moment of my life. My dad passed away in hospital in January this year,  he had dementia. I had been to see him a couple of days before but then they had an outbreak of Covid on the ward and on the day of him dying I was told I wouldn't be able to be see him. I live around a 3 hour journey away. The hospital then called me half hour before he died and said I could be with him, how could I? I wouldn't get there in time so devastatingly I had to just wait until they called me back to say he had died. My worst fear had come true I didn't want him to be around people he didn't know, he had gone into hospital from a care home after a fall with no one from the home with him. Sorry to waffle on but I've come to realise every passing is different. Your dad knew how much you loved him. Look how much you did for him. I think I'm trying to convince myself too that it wouldn't have made any difference if I had been with my mum or dad when they passed they knew I loved them and they are both at peace now together with my sister. Please take care of yourself and be kind to yourself too, your dad wouldn't want you to be upset because you weren't there. He would be very proud of you. XXX

     

     

  • Thank you so much for your lovely reply Carlos, it has helped me so much.
    I have been away for a few days with my family and although it was good to be in a beautiful place near the sea, I was so sad each day, and reading your message really did help me a lot to stop dwelling too much.

    I'm really sorry to hear that you too have lost your mum recently, I hope you are finding some comfort and feeling a little better each day. Your very insightful and considered reply shows you have a very strong character, and I'm sure this must be helping you through. Hearing that others are experiencing the same/similar grieving process helps to keep things in perspective, and everything you said makes absolute perfect sense.

    There's no way you could have known how much time there was left to get all the way over from China to see your mum, it's not exactly a quick, easy journey to make! Both our parents I'm sure will know that we would have done everything we could to be there for them. As a few people have mentioned to me recently, there's always the possibility that some people don't want their 'children' (regardless of how old they are) with them at their time of passing, simply to protect them!

    I do believe our loved ones are watching over us, and we are are both very lucky to have had such obviously fantastic parents.

    Thank you again Carlos, I can't tell you how much your message meant to me, it appeared just when I really needed it while we were away. I was struggling with all these complicated thoughts and also trying not to spoil everyone's holiday!

    After I read your reply, I kept reaffirming to myself 'there is nothing to forgive' and I can't thank you enough for helping me to realise that.

    I wish you well too in your journey and for everything you do in the future. Sincerely thank you again, Susie.

  • Hi Violet,

    Thank you so much for your comforting reply. It meant a lot to hear that others have been through similar experiences, and I'm sorry that you too have had to go through this.

    I totally understand the 'feeling like a machine' - I felt just the same. Running on autopilot constantly, and during dad's illness, acting in an almost robotic way, but I knew even at the time that this was to create some distance from the situation as it was simply too heartbreaking to see my dad suffering.

    I've never experienced the guilt part of grief before - my mum passed away from cancer when I was 19, and she died at home so it was my dad that made the main decisions about her care - I helped him right to the end, but I didn't feel any reason to feel guilty. This time however, it was me who had to make all the decisions, and I had no idea just how difficult that would be, and that it can also come with feelings of guilt.

    Thank you Violet, for making me realise there really is no reason to feel like that though, and it's just a natural part of the process.

    I hope you and your sisters are all ok and managed to find comfort in each other. It's so tough to see someone you love suffer and I'm sorry you too had to go through this. You too did all you could for your mum, and we should both be proud of ourselves for this. Being the main carer is exhausting, and our parents probably didn't want us to feel this way. They obviously chose to quietly slip away and avoid causing us any further pain.

    Thank you again, reading your reply helped me so much, and I truly appreciate you sharing your story with me. Take care and sending lots of love and peace, Susie.

  • Hi Susie, I am so glad that you found comfort in my reply to you.  Grief can be the loneliest feeling in the world.........at times it seems that you are the only person who has been through this kind of trauma, but when you connect with others who are going through the same thing (or have been through the same thing), you realise that you are not compeltely alone.  Take care mate, much love, Violet, xx