I lost my Dad to Lung Cancer

I have read so many peoples stories on these forms, and it upsets me greatly the number of people and families who have been affected by cancer. Life can be so cruel. 

Sunday 8th May 2022, the day after my Mums birthday, my Dad, aged 64 (11 days before his 65th birthday) so very cruelly and sadly passed away, after fighting stage 4 lung cancer from when he got diagnosis at the beginning of July last year. His body was riddled with cancer (lungs, kidney, liver, bones and the brain). He put up an incredible fight and was determined to fight it as much as he could. He was given chemo therapy and for a while the chemo was working. The cancer in his lung had shrunk twice and had stabilised everywhere else by January 2022. He used to go walks every single day, despite how tired he felt, to try keep himself fit and moving. When it came to his treatment days, he always said no to a lift to the hospital, and said he wanted to take the bus and walk as he never wants to lose his independence. The chemo worked for a while, but suddenly during the month of March, we noticed my Dad was becoming more breathless and the numbness in his fingers returned. It got to the point we had to take breaks every 5 minutes after walking around the park, and then as time went on, my Dad couldn't even take 10 steps without struggling to breathe and it took so much effort for him to walk up the stairs. My family took my Dad into the hospital during April, they done scans, and his cancer Dr had to sadly advice him that the chemo had stopped working, the cancer had grown again in his lung, had spread more in his brain, and there was nothing else they would be able to do for him. My Dad walked out of the hospital devestated; he had so much hope that we was going to make it through another year. He didn’t want to go as he loved his family; it’s heartbreaking. The Dr then called my Dad and family back to the hospital and advised they were going to up the dose on my Dads steroids, and if he could see that Dad could do small things like hoover without struggling after 3 weeks, then they would put him on Immunotherapy, but if there is no difference, he would be given the option of a stronger chemo. This gave my Dad hope, however over the next week, we noticed the steroids weren't making any difference, and Dad continued to decline, becoming more exhausted and fatigued. On Saturday 23rd April, my Dad took a LFT test and had tested positive for covid. The Wednesday following that, my Mum advised that my Dad struggled terribly during the night, so I phoned the hospital and they sent out paramedics to assess him. He got took into hospital and was in the covid unit until Monday 2nd May. On this day I went to visit him, we weren't allowed to visit for the first 5 days due to him being in the covid unit. When I visited my Dad, I had to take a moment outside the ward. I was so upset as I seen he could no longer walk and the nurses had to assist him to the toilet. He was losing his independence - the one thing he was absolutely dreading. I sat with him for 2 and a half hours, during that time he got moved to the respiratory ward. I had bought him a t-shirt and showed him it and told him I would take it home and he can get it when he's back. I honestly believed he was coming back home as the doctor in the covid unit had originally advised that because all of my Dads energy had been used to fight the infection, his leg muscles have lost the energy to move, but they were going to give him physio to get the strength back in his legs. A few days later, my Mum got a phoned call from the doctor to advise the absolutely dreaded news, that my Dad was deteriorating, he had less than 2 weeks to live, and it wasn't the covid that done it, it was the cancer. The Dr advised that he could not believe my Dad was living for as long as he were as the cancer was everywhere in his body, he said he had never seen anything quite like it. The news absolutely shattered me and my family. They didn't advise my Dad of the length of time he had left, my Dad still believed and was determined he was coming back home, despite how quickly he was deteriorating during that week in hospital. When visiting he would keep saying "I just need to get my strength back" and was chatting about us having a takeaway at the weekend. One of the days after we found out the horrible news, he told me and my Mum he was coming back home on Sunday, we just went along with it. He could barely talk by the end of the week and was constantly fatigued, lost his appetite for food. It didn't stop him from trying to have conversations though, just the conversations were short and small worded. On Saturday 7th May, I could see my Dad was struggling, and it was then I knew, he would be lucky if he makes it to Monday. I had a moment with my Dad alone that evening were I asked him for a hug, he said of course, and kept patting my back as I hugged into him and he layed his head on my shoulder for about 5 mins. I sat beside him crying telling him how much I miss him at home and home isn't the same without him. He didn't seem to realise me crying beside him. He was confused about things by this point and advised he just wanted to move his legs and do something for himself. Sunday 8th May, at 4am, my Mum got the dreaded call to advise my Dad was deteriorating quickly and we should go to the hospital. We ran to the car, up into the hospital. We sat at his bed side. We comforted him as much as we could, speaking gently and chatting about great memories we had as a family and how much we love him. Dad was in a lot of discomfort and pain, the morphine didn't seem to be cutting it, it was horrible to witness, and he was still trying to fight it despite the odds. The nurses came into the room and managed to position him comfortably and he told the doctor he didn't feel pain no more. He kept reaching holding onto my mum, we was all so upset but also trying to hold it together to make his last moments as peaceful as possible. My Dad later passed away that morning with me, my sister and my Mum by his bedside holding onto him. We are so heartbroken.

There’s a lot of anger. He didn’t deserve it; he was an incredible man. He didn’t want to go, it wasn’t his time. He worked hard, paid into a pension all his working days, and was looking forward to his retirement with my Mum who was the love of his life from the age of 22. To pay into a pension all your working days, make plans for your retirement, to then get absolutely nothing out of it due to a disease you can’t control, is so cruel and unfair.  We will live the rest of our life’s wondering what caused him to end up with the horrible words lung cancer. I read that 70% of lung cancers are caused by smoking, but my dad didn't smoke.

We like to remind ourselves, the suffering he went through for 10 months, not being able to enjoy life as much and have a drink on a Saturday night like he always did, was for a very small fraction of his amazing 64, only just over a week away from 65, years of life he got to live and enjoy. He is now at peace and not in pain anymore.

He was everything you want a Dad to be; so fun, protective, loving, caring, and by far the funniest man I have ever and will ever know. No matter what decisions me and my sister made in life, he was always so unbelievably proud of us. He was a well liked man. My Mum, sister and me were his life. He loved us to bits and we done everything as a family of 4, and continued that till the end. We will continue as a family of 4, as we believe he is going to be watching down on us everyday.  

We miss him so much. Home isn’t quite home without him and it does feel empty. I’ve never felt such sadness and grief. Just been crying constantly since the day I found out he didn't have long to live, but I've been upset and occasionally crying from the day he got diagnosed.

I find it helpful during the grieving process speaking to and reading others stories who have/are going through similar. 

My Dad will always be remembered for being the amazing, smart, caring, loving man he always was until the end. Even kept positive and light hearted after he got diagnosis and never allowed it to stop him living; he still went out daily walks and took each day in his stride being the proud man he will always be. 

I honestly don't know how I'm going to cope and continue the rest of my life without him. I'm 25 years old and my sister is 26. There was so much we wanted him to see: us getting married, having kids. He's been robbed years of his life due to the horrible disease, and I can't quite come to terms with it. He was my rock and my best friend. I'm so so sad and just wish it was all a nightmare.  

I like to think we’ll be reunited one day, not soon, but one day, and I can’t wait already for the day I get to see my Dad again.

  • I am so sorry to hear of your loss. You sound like a very close family. Look after one another and cherish all the lovely memories you have of your precious dad. I will pray for you. God bless you all.

  • Hi Homebird,

    Thank you! It's just so difficult atm and we're all devestated. It's the memories and the videos and pictures of him that will keep us going. 

  • I am so sorry for your loss. I'm going through a similar situation now, losing my granda. Which I look to as my dad as my mum was a single parent. He's my best friend, we are literally so alike in every way. I can say there is not on person on this earth that gets me like he does or who I get them the way I get my granda. 
     

    i am losing him in front of my very eyes at the age of 74 and I am heartbroken, terrified and lost. I don't know how I will even breath let alone survive without him by my side. I ring him and my granny twice a day and call in every day that I'm off work. 
     

    he was diagnosed with tonsil cancer last October. Told it was curable. Went through 6 weeks of radiotherapy which was horrific for him and horrific for us to watch as it effected his swallow, he couldn't eat or drink, the radiotherapy burnt his mouth and throat, he was sick and dizzy. But only to discover it's in the liver and now in the brain (awaiting mri to confirm this). They thought he had a stroke at the weekend but now believe it's the cancer. Today he deteriorated out of nowhere, unable to walk, stand, sit, use the toilet unassisted. I had to pick him off the bathroom floor where he lost his balance while trying to use the toilet.

     

    i am so so so sad. I can't even begin to describe how I feel. I feel numb yet heartbroken. I feel lost. The world as I know is about to change forever. How can I go on? Without my best friend the only person that gets me and tells me how it is.


    There is no doubt that your dad is watching over you and is proud. I hope I find the strength that you have 

  • Hi [@kfrances]‍ ,

    I'm so sorry to hear what your grandad and your family are going through. It is honestly the most soul destroying feeling, watching a loved one deteriorate infront of your very eyes. I understand completely how you are feeling. 
     

    Is your grandad in the hospital just now? It's awful how quickly cancer can spread to different areas of the body, and these treatments it seems sometimes only work for a short period of time for some people - my Dad being one of them. It gives the person going through it hope, that things are getting better, and then it's suddenly a massive punch to the stomach to find out its spread and grown.
     

    I looked online and read about the 5 stages of grief and everyone experiences them in a different order and at different points, which has helped me understand my emotions, and I've also spoken on the phone to Macmillan which has been helpful for me.  I started somewhat grieving the day my dad got diagnosis, but the day I got the call to say he had less than two weeks to live, that was when the grief really came to life for me. Since the call and since my Dad passed, I've experienced a whole range of emotions: upset, anger, sadness, numbness, lost, lonely. For a good while there, the only time I was smiling was speaking of great memories about my dad and watching back on funny videos of him. Now I'm able to go out walks and meet up with family or friends and have my mind distracted for a bit - this time last week I struggled to get out of bed - I'm finding each day does seem to get that little bit less difficult, I just take each day and the emotions as they come, it's all part of the grieving process. What has happened is still very fresh and the slightest things regularly set me off in tears that remind me of him. My Dad past 11 days ago, and I still go through all these different emotions.

    It seems the bond you have with your grandad is very similar to the bond I have with my Dad. I felt the exact same. Even with my Dad not being here, that bond I have with him is never gonna go away. I feel it everyday, the love and care he has and always will for me.

    It is tough, and so difficult to process, especially when the decline is so sudden and quick. It's amazing you have such a loving family, and your grandad has amazing support around him. He will cherish and appreciate the moments you spend with him as often as you can do, even the phone calls. And that bond you have with him, will never go away.

    Take care and look out for one another during this tough time. x

     

  • I did the same when I first found out it had spread (before we knew how bad it really is), I searched about grief trying to understand it, looking at other peoples experiences in the hope it gave me comfort or the strength to get through this. 
     

    Awh I don't know how I will cope or get through life without him. I've been so lucky to have my granda because so many of my friends lost theirs before they could remember him or lost their grandparents when they were young teenagers.

     

    life just doesn't seem beautiful anymore. It doesn't seem enjoyable or lovable. Without the most loving caring beautiful person by my side. I'm so not shy to say he is my best friend.
     

    my heart is broken this morning, wakening to realise it's not a dream. Trying to shake it off so I can let work know I won't be in and head up to help my granda get through another day unable to move like his usual self. 
     

    if you have any advice, they are so welcome this way! I almost feel like I need some kind of counsellor or grief group already cause these feelings seem unbearable to deal with alone. 
     

    im so glad you are finding each day less difficult, though probably still difficult none the less, just not as bad as the day before. I hope in time I have your strength. You'd think being an oncology nurse I'd have some strength but I don't. I feel sick to the stomach, the pain, grief, pain, anxiety and fear swirling in my tummy at once is just awful. 

  • Hi Kfrances,

    I lost mum, three weeks ago and I was in China when they said goodbye and cremated her and it is going to be my honour to take her back to her home country in Latin America and that is where I will say my final goodbyes to her with her family over there as I scatter her ashes into the sea (the Pacific Ocean).

    So, how I see your dilemma is this - your granddad lost his parents and his grandparents and he carried on to have a happy and wonderful life which he shared with you. So, you will find happiness as he did when he lost his parents and you were a big part of his happiness and there are going to be people now or to be born who are going to look up to you to make them happy, make them feel loved, make them feel protected and to give them the answers to lifes little dilemmas and problems - he is passing a mantle onto you like his parents and his grandparents did with him.

    My mum before she passed told me how to live my life when she passed and everytime I think of her now, the voice in my mind says 'she's at peace' and she is with all the people she loved who passed away before her, she doesn't have this horrid cancer and failed kidneys anymore, there's no more hospital visits and hospital stays and personally, seeing her die slowly before my eyes on Skype and I wasn't able to come home in time because she deteriorated so quickly that I missed my chance to say goodbye in the flesh was very painful but I am happy now she isn't suffering anymore.

    You're hurting because you are seeing granddad suffer but when he finally passes into the next stage of his journey, you are going to be happy in a sense that he is at peace and he will always be a part of you like my mum is a part of me - if I want to have a reminder of that, I just go and have a good long hard at the nearest mirror and there's mum! Looking right back at me!

    Mum went through the same trials, tribulations and losses as I am going through now and she found her happiness and her reason for staying around as did your granddad - all it is, Kfrances, it's our turn today, that's all and tomorrow it is someone elses turn and next week it will be some other persons turn and the 'circle of life' just carries on like a never ending conveyor belt until it's my turn because in another 30 or so years, I won't be here and then your turn will come. Until then, my mum wants me to be happy (and she specifically said that) and granddad wants the same for you when he finally leaves us.

    All I can say is to tell him you love him and just be there for him for the time he has left and when you start missing Granddad - just go and find a mirror and have a good long hard look and you will find him looking back at you with a smile. Take care.

     

     

     

     

  • Hi Zoe,

    I remember grieveing as my mum was deteriorating and I was 5000 miles away and seeing it on Skype and that hurt a lot more than her actual passing (which of course hurts and I miss her daily and the thought I will never speak to her again hurts like hell...) but when I think about this, my thoughts turn to 'she is now at peace and she doesn't have cancer anymore' which she doesn't.

    You're right too about the bond with your dad will always exist as long as you exist. Every time you look in the mirror, dad will be looking back at you and that will be the case until it is your time to leave this mortal coil, you're his flesh and blood, his heir to whatever values and decency he instilled into you and his/your legacy now is to carry on those values and instill them into your kids and try and influence friends and wider society.

    I am so sorry for your loss and it does hurt, I am hurting now, but I know what my mum wanted for me to do and she wanted me to be happy one day soon and to get on with my life and one day we can all be reunited with our loved ones when we're done and dusted with this place. It will come soon enough (depending on how old you are of course, I am 50 so I don't have long in big scheme of things) enjoy your life because that is what your dad would have wanted.

     

     

  • It's an amazing bond you have with your Grandad, and even when the time comes, that bond doesn't go away. I still feel the love my Dad has for me everyday, and that will never go away. He's brought me up alongside my Mum to be the person I am today and I am forever grateful to have had such an incredible Dad in my life. 

    It's true when you say life just doesn't seem beautiful anymore. It is difficult to adjust to the change. May is going to be a very difficult month from now on for me and ma fam, as well as xmas, new year... Ma Dad played such a big part in the family traditions, and without him, they will never be as fun and rememberable. He was the funniest man I've ever known and I know I'm never going to laugh the same in life. However, I know he wouldn't want me to look at life in such a bad light and he was so proud when I graduated and got my job, which gives me motivation to go back to work. 

    I've found reading others stories, and knowing me and my family aren't alone, has been helpful as we can relate to the chats on these forms. I created an in memory donation page for him and I'm planning on taking part in cancer research events to rasie money. I'm planning on seeing a counsellor as well to try help with the grief, 2022 has just been a terrible year so far. I've found being around my Dad's side of the family has been somewhat comforting, watching funny videos and seeing brilliant old photos of him, sharing memories with ma Dad's side of the family and them in return. I also find comfort in knowing ma dad is no longer suffering and in pain - he's at peace. 

    Ma Dad passed 2 weeks today and I can't believe how slow, yet quick time has went by. I think about him near enough all the time atm, adjusting is difficult, and missing him is never gonna fade.

  • Hi Carlos, 

    Thank you for your message. I'm so sorry for your loss. I completely understand, watching a loved one in pain due to a horrible disease you have no control over, is heartbreaking. I feel the same way, I find comfort in knowing my Dad is no longer suffering or in pain - he's at peace. 

    They're such nice words and do bring me comfort, thank you. It's so true, my dad has the same mindset. I know he would want me to enjoy life and go back to work, which gives me the motivation to return to work. I believe 100% we'll see our loved ones again, and I will always hold on to that thought forever.

  • So sorry for your loss. 

    Mu mum was diagnosed with stage 4 cancer last year and passed away only 3 months later. We were shocked and devestated by the diagnosis as we are such a close family and talk/see each other nearly everday. 

    We honestly thought that with treatment we would have another year or two but disgusting delays from the NHS to start treament meant my mum deteoriated very quickly and suffered so much in that last 6 weeks of her life. It was horrendous and heartbreaking to watch and feeling helpless to take the pain away. 

    I feel traumatised by how quickly it happened and that I will never see her again. I try to stay strong and keep going because I know that's what she wanted but I feel so angry and sadby the cruelty of it all. 

    Reading your post brought me to tears. I hope you and your family stay stong and my heart goes out to you.