Hi,

I am posting here as my boyfriend has an appointment tomorrow with the clinical oncologist tomorrow- this will be his second appointment but with a different team.

my boyfriend was diagnosed with penile cancer that had spread to the iliac nodes in august 2020, he had an operation to remove all these nodes on the left and most from the right, everything seemed to be going ok until he found another lump in august 2021 -the cancer had spread to the pelvic nodes and this time he was told it was inoperable and would need to have chemotherapy to shrink the tumours before an op can take place. This is where it gets complicated- my bf has stage 3 kidney failure and is also a transplant patient who has been on immunosuppressant treatment for 11 years- so he was sent to the oncologist who explained that chemotherapy is not an option because his kidneys wouldn't be able to cope with it, he can't stop his immunosuppressants or have the transplant removed (pancreas) he was then sent back to the surgeon who has said they can operate now !? So he has now had this operation to remove the pelvic nodes, results from biopsies from this operation have shown cancerous cells in other tissues taken during the op. This was 2 months ago, he had to ask for a follow up scan which was done 5 weeks ago and now he has an appointment with the oncologist again tomorrow.

what I am confused about is being told that chemotherapy and radiotherapy weren't an option before and now being sent back again- it just feels like they are calling him in again to repeat that there is no help going forward.

has anyone else been in a similar situation with being on immunosuppressants and having chemotherapy? 
 

im sorry for the rambling I just don't know where to go from here- I am trying to be positive and hope for the best but I am now struggling. He is only 42 and I am only 35 and didn't think We would ever have to deal with such a hard situation  

thankyou for reading x