Hi there, 

I don't have any experience to share but I'm going through a similar thing with my Auntie whom im very close. It's taken 3 months to get a diagnosis and now saying Colon cancer has spread to both liver and lungs which is inoperable. She's now been in the hospital over a week and not one test or treatment completed, the only thing they are doing is dosing her up on morphine. She's in extreme pain and it seems no one is helping abs we aren't being told how bad and what to expect. I hope your Mum gets her biopsy results back really soon, I know just how frustrating it is waiting when you can see your loved ones deteriorating. Sending hope and love you way x 

Thank you for sharing, I'm so sorry about your aunt and I hope you are coping ok, I don't know wether you feel like this but it feels like this is it now because she's so dosed up on morphine it's almost like that's it now until she goes and she won't come out of hospital and I also feel like by the time we get results back she will finished almost, I know it sounds bad but it's the way it's going, what you have said above is exactly what is going on with my mum, no one is telling us nothing!  Have you demanded to talk to doctors on the ward as I've done that and they seem to k ow nothing, speak to the maitron on the ward if you can as that's what we are trying to do 

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Your experience is completely the same as ours and I know what you mean about the morphine. My Aunt wants to go home so she can have her family around her so ive pushed the hospital to consider this particularly is they are telling us they can't offer treatment. They've decided on Monday they need another CT scan so they have up to date images, this is because the ones they have from a month ago are now too old apparently to use to determine what if any treatments may be offered. I'm so cross as it seems they've just sat on all the previous scans, we've now been through two MDT meetings and they still can't decide what can be offered, nor have they managed to get her severe pain under control. I was promised a call today from the doctor with a plan to receive more information but they haven't even completed the CT scan that should have happened on Monday. Surely with such advanced cancers these tests should be completed urgently. I'm all honesty I'm at a complete loss and totally lost all faith in our medical system. The level of care has been non existent which makes the emotional roller coaster of seeing my loved one decline much harder. Just from our experience it took 3 weeks to get my Aunts biopsy results back x 

I feel the same let down by the nhs, we are getting no support with anything, it was basically like they told her she had liver cancer then went away and didn't come back, no one called me being her next of kin, also she is supposed to have a social worker that spoke to my mum whilst she was off her face on morphine! She couldn't remember nothing so why arnt these people calling me?? I don't understand, please keep me updated as I'm here for support and I shall update you with my situation xx

Though I'd pop an update on here, so we are now in a position that we have a diagnosis of Colon cancer with spread to the liver, lungs, lymph nodes and we found out yesterday the spine too. The MDT meeting to discuss happens next was on Friday and then everyone goes home for the weekend and so we are left to wait until Monday to know what treatment they can offer to help manage pain and symptoms. We don't understand it all as all this is after a clear colonoscopy and MRI scans in March so to be in the position is almost unbelievable.