Hi everyone,
I care for my mother. She is only 75. I feel very frustrated as I am struggling with dealing with all relevant agencies. My mum has late onset dementia/Alzheimer's also terminal breast cancer. She is just about mobile in her own home.
She was diagnosed last September with cancer 3cm lump and decided no treatment to be given as her mental capacity could not take a double mastectomy or chemotherapy, she is double incontenent but will not keep a pad because she does not understand. She no longer recognises food. But all that is on offer of help is care agency who cannot give mum tablets. Wash her. Clean her. They are good at making coffee and sandwiches and plonking them on the side, so no personal care what so ever. Now mum is so sore down below with sitting in urine for hours but not one agency will take it onboard. Social care no. Carer agency no. Doctor no. District nurse no. Macmillian no. So my mum is left in agony. I feel sick, exhausted, cannot sleep for worrying. Feel like I'm having a break down. But none of this is caused by caring for mum it is caused by spending endless hours in meeting on the phone sending emails and getting nowhere. I have even got to the point of saying I cannot care for mum for a couple of weeks just to get someone to listen but them that's mum suffering. Can have respite but can you imagine but does not know what day it is and they want to isolate her in one room for 10 days for a 14 day respite as much I feel I need it I could not do that to my mum.
1.30 in the morning and wide awake worrying what to do next to get help.
