Brain tumour

hi, my husband is on EOL care with stage 4 brain tumour was given 6weeks to live in February but still here fighting. Had to go into respite care a few weeks ago due to having tia's and aggressive behaviour but thought it was all sort with medication changes etc. Came home (his wish is to die at home) 48hrs ago and has kicked me, punched me, spat medication out amongst other things. Today care providers and our palliative care nurse came as an emergency and have suggested that he really needs for both our safety to go into a nursing home as I cannot provide his 24hr needs on my own as the tumour placement is causing a lot of problems. I'm absolutely devastated and after looking after him for 13montjs on my own feel so guilty about even considering this let alone doing it ! Yet I know realistically it's the best and safest thing to do. Does anyone have any experience or advice for me I would be so grateful to hear any. Lots of love xx

  • Hello Honeybee2,

    I'm sorry to hear about your situation and how this is affecting you. It's a very difficult time so you mustn't feel guilty as you're doing all you can for your husband. His medical team are there to help you through the next steps and there is some information here, which might be useful. It's important to look after yourself. If you'd like to speak to one of our cancer nurses, you can on the freephone 0808 800 4040. Lines are open from Monday to Friday between 9am and 5pm.

    All the best to you both,

    Moderator Anastasia