Hello. 
My mother recently got diagnosed with PV and I am seeking all and any help I can find to help care for her. I am very young, and she is the only family I have. She is already feeling very tired and breathless, even though the regular phlebotomys have got her haematocrit levels back to 41-42 (for now). She lives in a small town in India, and even the local doctors we are consulting with have very little knowledge about MPNs. I have never posted on this forum before, but I thought I could gather information from people living with similar condition, and understand how to best manage the symptoms, what foods to eat, what alternate methods help and work etc. For example, I read somewhere online that CBD oil helps ease symptoms, is that true? I also read that when her PV progresses, we would be given either interferon or hydroyurexea - but that Ruxolitinib of immunotherapy is the best choice, if we might need to go for a Bone Marrow Transplant later. That Ruxolitinib has least side effects, and can be taken for many years? 

My mother is only 55 years old, and I am very scared since her diagnosis. I have come back from the UK to take care of her, but I haven't finished my studies yet. I am terrified about leaving her here alone, I don't even know how long she has. 
 

i will immensely appreciate any tips or help I can get. 
 

best, 

L