My husband has stage 4 colon cancer

After just a couple of weeks of stomach problems in July my husband had a scan in AE and we discovered a large growth on his colon as well as cancer in his liver. He was rushed into surgery and that was when everything in our lives stopped. We have a son who is ten and a daughter who is 8 nearly nine. 
Im doing everything I can to fight this and stay positive but it's tough as I have always been the fixer, the one who organises everything and my family are struggling to help me. They are looking to me to tell them what to do but I don't feel like I have any answers and just feeding the Kids and getting them to school and looking after my husband is about all I have in me.

I can't sleep tonight and I think I'm hitting a wall after 3 months of not knowing if my husband has days or  weeks and now months to live. He is having chemo and will have scan after the next lot to see if it's working but it's only palliative.

I am to return to work this week and I thought I was ready but the fact I'm writing this st 3 am suggests to me that I a mess.

  • My dad was diagnosed in 2018 at stage 3/4 he is currently no evidence of disease has gained weight and is looking fantastic.so please keep your faith. 
    I am currently going through my own vowel cancer scare now at 29 and I'm utterly terrified of the outcome. What were your husbands symptoms that prompted him to go to A&E 

  • He had what seemed like food poisoning initially and then became severe constipation. His cancer is what's known as a symptomatic and is. Common making up nearly 20% of cases of colon cancer. Thank you for messaging me and giving me hope. I had a dark night last night. I have been "being brave" but actually I think you do need to reach the bottom sometimes and acknowledge the loss.. I'm so sorry to hear about your situation and pray you don't  have cancer but if you do, remember what a strong family you come from and that you too must keep the faith and believe you can create a good outcome.I've been up most of the night so I'm probably not making much sense. Can you tell me what treatment your dad had? 

  • In 2015 I was diagnosed with stage 4 bowel cancer which had spread to my liver. Very scary time for myself and my family.  Very quickly I was operated on to remove tumour, it was such a relief to be rid of the pain.  I was then referred to a specialist liver unit and three weeks later operated on to remove two tumours and 65% of my liver.  Following three months of recuperation I began 8 courses of adjuvant chemotherapy.  I won't pretend it was easy but had amazing support from all my specialists, oncologist and their teams.  Their positivity made me believe I would get through this.  12 months from diagnosis I Returned to work, following  five years of reviews I am now discharged from their care just need a couple more CT scans then all treatment finished.  I feel so lucky and thankful every day for all the medical expertise, support and the care from my family and hope your family has the same outcome,  stay strong and accept all the help that is available to get you through this traumatic time

  • Thank you so much for responding with such a positive message and congratulations for such a wonderful recovery. It would be great to know if you were told that you could recover because my husband has only been offered palliative treatment so far. He had and hasn't had any discussion of treatment on his liver. We still believe we can beat this and we are using diet and supplements to help the Chemo and hopefully give Paul a better chance. Did you do anything like that? 

  • Hello

    i am glad my story helped a little.  I was not told directly I would survive but at my initial consultation I asked if it was "hopeless" my surgeon said he had a plan and when a plan is

    in place it was not hopeless but no guarantees that I would survive.  I appreciated his honesty and agreed to do everything they asked of me to stay as fit and positive as possible to cope with the planned treatment.  I did not take any other supplements I would not even take any additional medication even for a headache, I wanted my body to only have to cope with the chemotherapy and thought if there was nothing else to fight against it would work better.  I think every person deals with cancer in their own way and what each of us chooses we can only try and hope it works.  I am so sorry to hear your husband is having palliative treatment, you both need to do whatever you feel will help you to cope, stay strong x

  • My dad had surgery followed by chemotherapy with many complications along the way, he has a stoma bag abs suffered complications around that.

    my dads only symptom was a feeling like he couldn't empty his bowel properly.

    he lost lots of weight during treatment and I think he spent 5 weeks in total in hospital as well as being on nill by mouth for around 2 weeks. 
     

    he's since gained a lot of weight back and is doing very very well x

  • Hi. I'm sorry to hear about your husband. My best friend was diagnosed with terminal bowel cancer at 46 last year. It was already in her groin, liver, lungs too. They were only offering one session palliative radiotherapy but she really pushed for treatment and was accepted on a trial. She initially had a good response to chemo but the cancer returned very quickly and more chemo hasn't helped. She's now beginning immunotherapy. I guess what I'm trying to say is it's important to have all your questions answered by the oncologist and to not be afraid to ask what treatment options are available. My friend was given 6 months or less but it's nearly 18 months since her diagnosis. 

  • Thanks for your message. It's really kind of you to take the time to answer. I'm so glad you are doing  well and it gives us hope .

  • Hi, I am so sorry to hear of your situation.  I am in a similar situation myself as my husband has got terminal bowel cancer. We were told last December he might only have 6 months left but 10 months down the line he's responding well to treatment and he's still going strong, We have a 4 year old boy and my heart breaks when I watch them together, as hard as it is try and stay strong and take each day as it comes ( that's what I try to do) I have to remind myself that making myself ill worrying isn't going to help them and we can't change what does or doesn't happen, we try to carry on with life as normal as we can. Spend quality time together and make lots of memories x