My amazing husband is about to undergo CAR-T

Hi all 

My soulmate of 30 years and amazing dad to our 2 girls was diagnosed early this year with non Hodgkins Lymphoma (DCBL). Chemo has failed to work, as has GDP and he has more tumours despite months of treatment. We're now looking at CAR-T. immunotherapy and I am so scared.  Before any treatment began, our consultant said his disease was curable and had very high confidence he'd be in remission by now seeing as he is young (48), fit and healthy.

This week however, the consultant told us without any further treatment he would have 2-3 months life expectancy.
I am in shock and am really struggling to a) stop crying and b) stay hopeful and positive that CAR-T will work. My husband on the other hand is being a rock, stoic and very philosophical about things - saying he's made peace that he may not survive and I should too make peace with that potential outcome.

I feel overwhelmed - like this is a dream I'll wake up from. I just don't know how to stay positive, hopeful and enjoy that we still have today.  

Any advice or suggestions from anyone feeling the same or who has been / is going through something similar would be truly appreciated. 
xx
 

  • Hello Mandy74, 

    I can completely understand why you are in shock as you didn't expect the consultant to tell you that his treatment failed to work. It's good though that there is still the option of CAR T-cell immunotherapy and you can find out more about this treatment on this page.  I hope that it works for your husband and I know it's really hard after everything you've been through recently together but try and stay hopeful that this treatment will be successful. I am certaintly keeping everything crossed for you. 

    It's normal that you are feeling overwhelmed and it can be really hard to stay positive and hopeful in situations like this. I know it's easier said than done, but try and take one day at a time if you can and to do special things together. I am sure he appreciates your support and you being by his side during this difficult time. He sounds like an incredible man and I wish him the very best for the start of his immunotherapy treatment. Keep us updated if you can on how it goes. Have you got a start date for it? 

    Hopefully you will meet other members of this forum who have been going through something similar and who will be happy to share their own stories with you. We're all here for you whenever you feel the need to offload and I am sending you huge positive vibes ahead of your husband's treatment.

    If you had any questions about his treatment or simply wanted to talk to one of our nurses about it, feel free to give them a call on this free number 0808 800 4040 - their line is open Monday to Friday from 9am to 5pm.  

    Best wishes, 

    Lucie, Cancer Chat Moderator