Hi all
My soulmate of 30 years and amazing dad to our 2 girls was diagnosed early this year with non Hodgkins Lymphoma (DCBL). Chemo has failed to work, as has GDP and he has more tumours despite months of treatment. We're now looking at CAR-T. immunotherapy and I am so scared. Before any treatment began, our consultant said his disease was curable and had very high confidence he'd be in remission by now seeing as he is young (48), fit and healthy.
This week however, the consultant told us without any further treatment he would have 2-3 months life expectancy.
I am in shock and am really struggling to a) stop crying and b) stay hopeful and positive that CAR-T will work. My husband on the other hand is being a rock, stoic and very philosophical about things - saying he's made peace that he may not survive and I should too make peace with that potential outcome.
I feel overwhelmed - like this is a dream I'll wake up from. I just don't know how to stay positive, hopeful and enjoy that we still have today.
Any advice or suggestions from anyone feeling the same or who has been / is going through something similar would be truly appreciated.
xx
