Myelofibrosis diagnosis

Hi my dad got diagnosed with myelofibrosis last year and has recently been receiving blood transfusions. Although recently these haven't been helping. We spoke to the haematologist today who says he has a few months left most. He has lost a lot of weight and we decided at his age if 85 that the chemo would not be beneficial due to the side effects and his co-morbidities of copd etc. Just wondering if anyone has had a similar diagnosis and has any suggestions on how to improve his quality of life as he's now having fortnightly transfusions and is really poorly. My daughter suggested soursop as an alternative therapy, the haematologist said it won't harm but looked pretty unhopeful.

 

charl

  • Hello Charl

    I'm sorry to hear about your Dad's diagnosis and that recently things have deteriorated for him. It sounds like an incredibly difficult time for you all. 

    Other than the fortnightly infusions that your dad is having, does he have any support at home from the palliative care team or district nurses? If not then this may be something you can ask the Consultant about as they will be in a good position to try and make sure that your dad is as comfortable as possible. 

    If you'd like to talk things through with our team of nurses you're most welcome to call them. I'm sure they will be happy to offer any information, advice, and support that they can. They're available Monday to Friday 9 am to 5 pm on 0808 800 4040 (excluding bank holidays). 

    Best wishes, 
    Jenn
    Cancer Chat moderator